How to ruin someone’s day? Update her computer while she sleeps.
Microsoft, in its infinite wisdom, enjoys doing this. Don’t Turn Off Your Computer, it advises when you’re trying to turn it on. We are updating . . .
This is a signal just to go back to bed and pull the covers over your head.
I mean, really. Has any Update ever been invented that didn’t drive its victims up the wall? Has any Update actually updated itself into something better than whatever it updated, which was something the user knew and understood? OK, I was unfortunately born (long ago) without a left brain and understand zilch about technology. But still. Those of us who have journeyed from manual typewriters to PCs would like a little stability.
AND NOW. I am adding the journey from PC to Mac, which is dangerous to the health of anyone over 60, and I am wayyy over 60. (Why, you ask? Well, ask my children, and all those geeky friends who assured me how much I will love this Mac. Or ask Microsoft why they forced the issue by closing those lovely stores I used to go to for help. One can get help from the Genius Bar geniuses — I believe; that’s still an open question.)
Technology, the wise people insist on saying, is making our lives better. The wise people probably spend their spare time thinking of things to update on the computers of the unsuspecting – and frequently unwise.
Here’s the thing about manual typewriters: No one could Update them while you slept.
“Climate change is happening,” she says; “it’s real, it’s urgent.” The speaker is Paola Gianturco, a strikingly pretty octogenarian photojournalist/author, retired from a distinguished business career but decidedly not retired from anything else.
Adds her co-speaker ; “I learned about the water cycle (the continuous movement of water within the earth and atmosphere) and the carbon cycle (the process in which carbon atoms continually travel from the atmosphere to the earth and back) in fourth grade.” This would be high school freshman Avery Sangster, pointing out that those two cycles are keys to climate change.
The two spoke of the urgency of climate change in real-time stories. Alaska’s indigenous Inuit people, for example, have lived for centuries on the ice of the Arctic and subarctic regions where temperatures now reach 78 degrees and higher. “I’m not paralyzed with fear,” Gianturco says. She and her equally fearless granddaughter don’t want anyone else to be paralyzed; what they want is action. In search of climate action — and stories — they interviewed and photographed women and girls around the world who are “using intelligence, creativity, energy and courage to help stop global warming.” COOL documents the dedication and successes of several dozen of those women and girls.
They found, for example, Erica Mackie, Co-founder and CEO of GRID Alternatives, headquartered in the San Francisco Bay Area. Asked what’s special about her company, Mackie told the authors, “Well, for starters, it’s the only nonprofit construction company on the planet that’s focused on combating global warming, racism, economic inequality and gender discrimination.” The COOL women don’t tend to think small.
In Sri Lanka they found several women working with Sudeesa (Small Fishers Federation of Sri Lanka) who were among 15,000 Sri Lankan women planting mangrove trees. Should you think these are simply pretty trees that help the local population by attracting fish, “mangrove trees sequester about five times more carbon dioxide than other tropical trees,” while also burying carbon dioxide under the soil.
The information and quotations in this article are all from COOL: Women Leaders Reversing Global Warning. And this is only a small piece of the climate education available in Gianturco and Sangster’s colorful book.
Back in the U.S. again the photojournalist/authors found Miranda Massie, founder and Director of the Climate Museum in New York City’s Soho district. Massie credits her own “climate crisis unease” to Hurricane Sandy, the 2012 storm — still the largest Atlantic hurricane on record — that, according to Wikipedia, left 233 people dead across eight countries and did more than $70 billion in damage. “Our genius, inventiveness, ambition and creativity caused this climate crisis that could obliterate civilization as we know it,” Massie says. “It’s the greatest challenge the human species has ever encountered.”
If the above isn’t enough to inspire you to become a climate activist, this reporter recommends ordering a copy (or two or three or more for your friends and family) of COOL. On the inside page there are even QR codes you can scan for six ways to help reverse global warming. Super cool.
Early Friday morning — OK. But after, say, 11 AM, either convince yourself you’ll be fine until Monday or just go ahead and drink the hemlock. It will save untold humanoid hours.
Medical providers provide only sketchily after Friday noon. By Saturday morning, forget it. They’ve all gone to the beach for the weekend, or they’re taking their kids to soccer games, or one way or another doing things regular people do after Friday noon. These just do not include responding to the needs of the puny, so deal with it.
I, unfortunately, was feeling puny on a Saturday morning; and of course I exempt myself from all advice given to the rest of the populace. Therefore, I commenced a program to reach a Prescribing Physician for some drugs of which I felt a great need. This was about 9 AM.
If you are unwise enough to ignore my advice and follow, instead, my pathway, here’s what you may expect:
An hour or so of leaving your name, phone number, insurance information and intimate details of your lifelong personal history on assorted phone-trees. The chirpy voice requesting all this will assure you the doctor/clinician/pharmacist/whoever will respond within the hour. This is a lie. But in the grand scheme of lies one encounters when feeling puny on a Saturday it is negligent. I mean, really. Looking back, did you honestly feel as terrible as you told the chirpy voice at the outset?
Then, a few more hours of texting with your children, friends and the occasional perfect stranger who seemed medically knowledgeable on Instagram. They will all have excellent suggestions for stuff you never heard of, like probiotics that you can pick up at the nearby health foods store; so plan for another few hours of discussing your healthcare needs with the friendly health foods store people while you wait for the healthcare person who was going to call back by 10.
It is now supper time, but you’re too sick to eat anything so what does that matter. If you’re really lucky, someone will by now have broken through to the healthcare person who just got back from his kids’ soccer game, so he will actually text you a response. Something like “Oh, the XYZ isn’t working? Well I’ll write a prescription for PQR!” Relief.
But of course, all reputable pharmacies are now closed.
You will still find a pharmacy. Can I help it if it’s in the sketchiest or nuttiest part of town? You should’ve gotten sick 12 hours sooner. Well, anyway. Most cities will have an all-night (or Open Until 9:30 PM) pharmacy in one quaint area or another. If you’re in San Francisco, for example, that will be in the heart of the Castro District, where liveliness does not calm down a little until about 3 AM. On arrival to pick up your meds you may encounter an apparently dead person in the middle of the sidewalk, but another person standing near will say, “Nahh, he’ll be fine. . .” when you make polite inquiries. So you get in line — the lines will be very long, considering all the people who need drugs at 9 PM of a Saturday night — and you are eventually rewarded with a prescription.
Outside again you will find the paramedics have arrived to collect the formerly dead person on the sidewalk and deliver him to wherever users of weird drugs go to sleep it off.
So. Everybody’s OK now. Go home, take your own weird drug and feel better in the morning. But next time, try to get sick on a Monday.
The ads bombarding you 24-hours a day via the internet, TV, social media and every known pathway all have one goal: to get you to buy their product. Some of them are true. Some are truly misleading. Some of them are downright dangerous.
Chances are there’s a product out there that could be useful. Chances are even better that there are things that would be a total waste of your time and money, or downright damaging.
How can one rational person sort it all out?
Three experts recently appeared at the Commonwealth Club in San Francisco to offer help: Dr. George Lundberg, founder and president of the Lundberg Institute (designed to build better-informed patients, physicians and relationships between the two;) Dr. Kirsten Bibbins-Domingo, Editor of the Journal of the American Medical Association (JAMA😉 and Dr. Kamran Abbasi, Editor of the British Medical Journal (BMJ.)
“There’s information overload,” said Dr. Domingo; “there’s disinformation, there’s spin. We need clear, consumable information.” Dr. Abbasi added that thanks to social media and the proliferation of non-medical sources, it’s hard for ordinary consumers to find evidence-based medical information.
All this is thanks to Direct to Consumer marketing. Every country in the world bans DTC marketing — except the U.S. In 1997, during the second Clinton administration, the Federal Trade Commission relaxed its rules, allowing such ads to take hold. They’re unlikely ever to go away. Some estimates put the amount spent annually on DTC ads at nearly $10 billion.
Those ads are required to carry disclaimers in small print. Or they’re read at warp speed so nobody hears. “Common side effects include nausea and diarrhea, muscle ache, headache and joint pain. Rare cases of paralysis, brain disease or death have been reported.”
Dr. Abbasi offered two bits of wisdom:
1 — Consider the source. Where’s that information really coming from? You can always check with JAMA or the BMJ; but if that’s too much trouble you might just check with your own physician or healthcare provider before you listen to Dr. Oz.
2 — Follow the money. Who paid for that miracle drug, that claim, that ad?
In other words, read (or listen to) the small print before you buy. JAMA or BMJ are two good places to start; either can direct you to answers of your medical questions.
The ads promise nirvana, but failure to question can be harmful to your health.
A city dweller is alarmed by the terrible sounds drifting into her window. Dark, guttural cries. No words, just frightened, frightening cries. They seem to be coming from below ground, probably the stairs that go from the sidewalk to an entry into the garage of the building across the street, below her seventh-floor balcony.
Finally, the watcher calls 311. 311 is unquestionably the best thing the City of San Francisco has going for it. An actual, real person answers your call, and sends it to the appropriate other real person. “Someone’s in distress,” says the caller, watching (and holding the phone out) from the balcony window. “It’s been going on for some time and I’m worried about him.” Within minutes a red van and a white car quietly approach.
Four men get out of the van. They begin talking in soft voices to the stranger in distress. The watcher only picks up occasional words, but it’s clear they are trying to talk him into coming up. He’s no longer shouting.
Eventually, a forlorn figure emerges from below. The would-be rescuers gather around him, keeping far enough away that he won’t be frightened further. For 10 or 15 minutes they plead with him to let them take him somewhere for shelter, perhaps medical attention. He is having none of it.
Finally the figure shuffles off into the darkness, into the streets of the city which are, the watcher suspects, his only familiar. The red van and the white car drive away. The watcher goes back inside her warm apartment, feeling grateful for her city’s resources, but sorrowful for humankind.
Anita Hannig’s “The Day I Die” and Amy Bloom’s “In Love”
(The following appeared first as a blog for End of Life Choices California, an excellent nonprofit on whose board I’m proud to serve. It’s reprinted with pleasure, especially after Hannig told me that our blog resulted in more visits to her website than did her interview with Diane Rehm; I love being mentioned in the same sentence with Diane Rehm.)
Anita Hannig’s The Day I Die: The untold story of assisted dying in America has taken a well-deserved place as the definitive book on Medical Aid in Dying. Want information on how it works? On the history of the assisted dying movement? On the future of legal death with dignity laws? Hannig covers it all, in a book that reads like a personal, informal conversation with the author.
Hannig spoke recently with this reporter about The Day I Die – which is filled with stories of her own experience as a hospice volunteer, and accompanying other volunteers and professionals – and about the work we do at End of Life Choices CA.
“Volunteers are the lifeblood of assisted dying,” Hannig says. “They provide firstline support for families and patients, and it’s hard to overestimate the role they play. In my research, I witnessed how much families and their loved ones leaned on volunteers for their technical expertise but also – and equally importantly – for their human touch and care. In a time of great vulnerability and uncertainty, volunteers help patients navigate the ins and outs of qualifying for the law and accompanying them each step of the way afterward. The emotional labor volunteers put into their work is nothing short of admirable. I have profound respect for their work.”
Hannig, an associate professor of anthropology at Brandeis University, invested five years of study and hands-on involvement in writing The Day I Die. Along the way she accumulated a wealth of stories – poignant, humorous, heart-tugging, enlightening – that she shares in the book.
Looking ahead, Hannig says she wants to be optimistic about the future of the law, “but in the current political (or perhaps judicial) climate I am not sure such optimism is warranted. In the long term, however, I do think that we as a society will gradually move into a direction of granting more rights and freedoms to the dying. My hope is that assisted dying will eventually become legal in all fifty states.”
For now, Hannig says “there are still some misunderstandings about all the different steps someone needs to complete to qualify for assisted dying. Most people think it’s more straightforward than it actually is. Or they wait too long to start the process. Many are still under the impression that there’s a “magic pill,” when in reality the protocol of the medications is quite nuanced and complex. My book talks about the fascinating pharmacology of dying in more detail.”
The Day I Die, in fact, talks about the fascinating work of assisted dying in all its important, often difficult, always rewarding details. It’s a book to read, to keep and to give to those you love.
Amy Bloom’s In Love is a book for anyone facing Alzheimer’s, anyone who knows someone with Alzheimer’s – or anyone who’s ever been in love.
It is, despite the somber underlying theme, a love story.
Bloom writes unblinkingly of her husband’s decision to end his life before Alzheimer’s can pull him into years of oblivion, and her own decision to support him in this quest.
In just the first few pages it’s easy for the reader also to fall in love with Brian Ameche. Bloom writes with warmth and honesty about their love affair, begun while each was committed to someone else and eventually legitimized into a more or less conventional marriage. The handsome Italian architect/ex-Yale football player from a sprawling Catholic family and the celebrated Jewish writer/ teacher/ psychotherapist who share, at least, a dedicated atheism, create a life together bursting with joy. Until his diagnosis.
Brian, who has probably had Alzheimer’s for a few years, finally exhibits enough symptoms – confusion, forgetfulness, erratic behavior – that it can’t be ignored. And he is immediately, defiantly certain that he wants to end his life while he has the wits to do so.
In the U.S., there’s no legal, nonviolent way to accomplish this goal. Even in the 11 states or jurisdictions where Medical Aid in Dying is legal, one has to have a terminal diagnosis and be mentally competent; Alzheimer’s is a disqualifier.
Ameche and Bloom finally settle on Dignitas, a Swiss nonprofit that helps people with terminal illness – including Alzheimer’s – end their lives peacefully. But Dignitas, in addition to the costs of getting to Zurich, has its own strict regulations: certifications of Ameche’s diagnosis, medical information and proof that he’s not just depressed, time-consuming hoops that must be jumped through. The couple set about making it happen, while keeping their plans from all but a necessary few. Toward the end they accomplish the final details – notes to friends and relatives that will be delivered after Ameche’s death, discussions about his wishes, plans for a few celebratory days in Zurich – which do include a celebratory moment or two – and for a friend to be there to fly home afterward with Bloom.
Bloom skillfully weaves glimpses of their romance and marriage, the good and the bad, into the story of their struggle to meet Dignitas qualifications and complete the journey. It’s a remarkable journey, remarkably well told.
(For anyone addicted to audio books, as this writer increasingly is, this one is a special treat: Bloom reads her own words. It’s as if she were telling the reader the tale.)
Though still, I honestly believe, a very good driver, I cannot escape a tiny, nagging question: Could I live with myself if I were involved in an accident in which someone is injured or killed? Even if it were clearly not my fault, could I avoid suspecting some failure of eyesight or reflexive response or yet unknown factor had played a part in an accident that might not have happened if I weren’t driving?
So I have begun this conversation with myself.
It starts with the memory of former conversations, one in particular. For years my three sisters and I discussed who would get our widowed father from behind the wheel of his car (none of us wanted to volunteer.) “Never had an accident in fifty years!” our father would declare. None of us wanted to point out the chaos in his wake. We were saved by a family friend who undertook to explain to our father how much money he could save on gas, insurance, repairs, etc.; he threw in a list of small town neighbors happy to be on-call chauffeurs. My father died 12 years later, at 90, never having injured a fellow creature.
This background conversation relates to the personal relationship I have with my 2001 Volvo S40 The Bud. Less intimate than my relationship with its predecessor LilyPad, a forest green 2000 Volvo S40 that was demolished by a 14-wheeler in 2020. The LilyPad and I were turning right from the right-turn lane; the 14-wheeler was turning right from the center lane blithely unaware of the legal maneuvers of that little car below. I consider it a testament to good reflexes that I was able to get out of his way after he demolished the front of the LilyPad and before he demolished the rear; the driver’s side and I survived unscathed.
But two more years have ensued. The conversation continues:
How certain are you that your reflexes are really as good as safety requires? Suppose someone’s beloved dog darts into the street and you don’t hit the brakes quickly enough. Could you live with that loss — knowing that a better driver might have avoided it?
And how about eyesight? I have, like much of the over-70 population, macular degeneration. Cataract surgery several years ago greatly helped my vision, but still. I have AMD and my eyesight is only going to get worse. At what point do I decide it’s worsened enough?
I think there is no magic moment when one can say, Today I should quit driving. Occasionally a driver receives a signal. My sister Helen, for example, was in her early 70s when she went to get the family car from its parking space in a Boston street lot. Instead of backing up a few feet as she had done countless times before she went forward, rolling to a stop against a sidewalk sign.
Everyone said, “Oh, that’s a common error. Your foot slipped.” “Nope,” said Helen, as she handed the keys to an attendant. “Someone could’ve been on that sidewalk. I put my foot on the wrong pedal. I am never driving again.” She never did.
There are, of course, good drivers in their 80s — I continue to consider myself among them — or perhaps older. There are plenty of bad drivers in their 20s or 30s. But those of us in the older category should be peculiarly attuned to the questions about when we turn from good to bad. It’s unlikely to be one lightbulb moment.
So we might all do well to have the conversation. What are the pluses? All that money I’ll save on no more insurance, gas, repairs (you might figure from the age of my vehicles that car payments are not an issue.) Parking meters. Garage fees. Fastrak fees and miscellaneous tolls. And even as little as I drive it, The Bud is not helping the environment; its namesake worked hard for the planet.
The minus? It comes in handy. There’s the convenience of being able to zip off to the park or the grocery — almost the only places to which I frequently drive. Freedom? A lot of drivers cite their car as a symbol of freedom; actually, I feel most free when walking a few miles, carrying stuff in my backpack.
I live in a city where public transportation is quite good for the most part; taxis and ride shares are everywhere. For what I’d save on the costs outlined above I could take an awful lot of cabs. My father’s small town had no public transportation — but neighbors beat light rail any day.
You can see the direction this conversation is going. Before my next birthday — still nine months off — when it’ll be time for driver’s license renewal and close to time for new smog check, registration etc, I think I will have taken the leap, gotten the airport-effective Real ID, sold The Bud and adjusted to a new life of being chauffeured when necessary.
My baby daughter likes scooters. That would be okay if this were on the playground in 1967 when she was three. But now she is 58 and scooting around in the whizzing traffic of downtown Washington, DC. This is not easy on a mom.
When they were still quite young my children and I adopted a fine system called “Tell me about it afterward. So by the time I learned someone had spent the night alone in the Gare de Lyon because she didn’t have money for a Paris hotel room — well, at least I knew she had survived. This may not be a parenting style appropriate for everyone, but it worked for me. It’s probably still helpful that my children and I live on separate coasts, so our parental notification system continues to be effective.
Now that they’re older, my children’s risk tolerance has receded somewhat anyway. My son flies airplanes, but he’s a careful, confirmed Type A and you will want him to fly your airplane. The fact that he’s nearing retirement and insists on playing pick-up soccer with his buddies — well, that’s for his wife to worry about. (She does. She’s a mom.)
My older daughter, retired and living the good life, is into calmer, low-risk adventures like snow-shoeing and fly fishing. Plus, what she retired from was running her own spin studio so her fitness and safety are not that much of a thing for anybody to worry about.
The baby girl, Pam, though — she may be 58, but she’s still my baby girl — is in a category apart. I have been known to say I raised two yuppies and a free spirit. I made it through a decade or so of Pam’s rock climbing period by diligently not thinking about it. But one memorable time, on a weekend holiday, I found myself at the foot of a sheer mountainside she had recently scaled. (Long’s Peak, 14,259′) Across my brain suddenly flashed an image of my daughter — who is about 5’ tall and 100 pounds wringing wet — a mere speck in the middle of a wall of sheer granite. Sheer terror. But I did at least know she had quit rock climbing after that.
Currently, Pam, a nurse, is living and working in DC. For a while, she had two floors of covid patients. But she survived, along with most of her patients, and on a recent visit, we had the loveliest of times enjoying gentle pursuits like strolling around historic rose gardens and visiting museums. Walking home from the National Gallery, one day when she was working and I was roaming around on my own, I managed to get caught in a sudden rainstorm. (Living in bone dry California one forgets about rainstorms.) I waited it out in a building overhang — having cleverly left my raincoat in the hotel room — until Pam, just getting off work, rescued me with her ever-present umbrella. By the time we got back to where I was staying the rain had somewhat abated and darkness was quickly falling.
Not to worry, she assured me. “I’ll hop a bus right here.” The bus stop was across the street and directly below my third-floor window. “And if a bus doesn’t come along soon I’ll just grab a scooter.” Nurses in DC get a lot of appreciation and free scooters.
The photo above was taken at dusk in the rain from my window. If you squint you can spot a small person in nursing scrubs (no helmet) scanning a scooter lock, or whatever one does in preparation for scootering. It was taken a moment or two before she hopped on, wove her way across three lanes of moving traffic, and turned left toward home. Throwing her mother briefly into cardiac arrest.
Some things, I explained the next day, seeing her still alive and in the bloom of health, are much better left un-witnessed by moms.