You can’t quite find the right words?

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RECOMMENDATION

Someone you know has just lost a spouse, a parent, a child? A friend is going through a difficult divorce? Perhaps you know a family member of one of the 550,000+ Americans who have died of Covid-19 since the pandemic upended our lives?

You need this book.

Dana Lacy Amarisa, who spent decades as a marketing writer in the tech world, was long  empathetic with fellow humans in all of the above categories. As it happened, in those same years she suffered unimaginable losses herself. It was definitely the hard way to learn, and the long way to edit and rewrite; but Amarisa has just released a book that answers the stumbling- block question encountered by 99% of those listed above: “I just don’t know what to say . . .”

Amarisa’s little book – it measures four by six inches and is less than a half-inch thick – is titled Condolences Pocket Guide: What to Say and Not to Say to Grievers. Most of us have, at some point in time, managed to say the abominably wrong thing, or – worse – stayed silently absent because we didn’t know the right words. Now there is a guide to fixing that problem forever.

In spare language throughout the book Amarisa mentions her own losses. An infant daughter. Amarisa’s father’s death soon afterward. An eight-month-old son later lost. Divorce. Emergency surgery and a broken hand. Those experiences first taught her about the pain that can be inflicted by the wrong words, or by silence, as well as the comfort that the right responses can bring.

But Amarisa puts herself in our shoes and walks along. “Using pat condolences,” she writes, “is like trying to put out a house fire with a squirt gun. And grievers resent us when we do this.” Or – “Grievers need our heart. Unfortunately, most common condolences give grievers our mind instead.” Snippets of very good advice begin the short chapters in these ways. “Don’t push, insist or advise. Let them tell you what they need, and let that be enough.”

Condolences Pocket Guide manages to avoid the pitfalls of many “advice” books (the genre doesn’t quite apply) in never getting preachy or cloying or accusatory, or going in all those other directions that can quickly turn us off. Instead, it sticks closely to specific, recognizable situations and speaks without inflection. To help you avoid missing the point it also features thumbs-up or thumbs-down graphic illustrations throughout.

Amarisa covers the spectrum of grievers and condolers: what to say (and not to say) to kids, to casual acquaintances you run across in public, to someone whose loss is many months past. Ensuring its accuracy, Condolences Pocket Guide was written “In consultation with Dr. Alan Karbelnig, PhD Psychology and Dr. Carlos Bush, MD Psychiatry.”

It may be the collective grief we have all experienced since the pandemic hit. Or it may be having had one president utterly unable to express empathy followed by another president exquisitely adept in reaching into the hearts of his fellow humans. For whatever reason, it seems unlikely that anyone today wouldn’t identify with at least a few of the situations addressed in this compact little guide. But grieving and potential responses have been a dilemma since about the time civilization started trying to be “civil.”    

In 2003 this writer published an essay on Beliefnet.com – then in its early days as a nonsectarian spirituality website – titled But I don’t know what to say. I remember being fairly pleased with it (I am easily pleased, especially if it’s something I wrote) although a copy does not seem to have survived. Subsequently I sent my agent a carefully crafted proposal for a 10-chapter, 60,000-word book on interacting with those who’ve suffered losses. The outline and proposal for that tome do remain in my files, along with a brief agent-client correspondence littered with phrases like “marketability” and “limited audience appeal.” I will look back on this as having been ahead of my time (the kindest way I have of looking back.) But I am now happily shredding the whole folder.

Dana Lacy Amarisa has said it all in 74 small pages.    

This essay appeared earlier on Medium.com

Downsizing: The incredible lightness of being

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On moving from a four-story, century-old Edwardian into a 1600-sq-ft condo eight years ago I wrote a lengthy feature for the local newspaper (The New Fillmore, May 13, 2013) titled “Lessons Learned from Downsizing.” It drew editorial applause and a bunch of affirmative comments. But it seems not to have sunk in all that well.

I am back in the downsizing business. This time around it is partly a matter of trying to get organized, but despite the donating/tossing/selling/shredding activities of 2013 I am once again (or still) overwhelmed with Stuff. You don’t have to be a Marie Kondo drop-out to know how quickly Stuff can overwhelm. (I applaud every KonMari success story out there, but frankly never got past Step One.)

Here is the Big Truth: downsizing is good for the soul. Whether it’s moving from a 4-story Edwardian into a 3-room condo or reducing a tall pile of photo albums into one small box, there is a lightness akin to joy in the afterglow.

Photo by Max Vakhtbovych on Pexels.com

Looking back on it, there was some pretty good advice in my 2013 article. But as it ran to something over 5,000 words I’ll spare you the whole thing. (Digital copy on request.) I itemized its wisdom in eight lessons learned, which included: Treasures are your enemy; and The Fast-Disposal Plan: put it on the sidewalk with a large sign taped to it reading FREE. Also, even eight years ago much of what is cluttering up the planet (and our lives) could be digitized and made to disappear.

Downsizing is probably good for the soul at any age. What’s your teenager going to do with that wall of blue ribbons from hockey games or dressage events? Maybe one Little League trophy could be representative of the other 57 after the other 57 go to the Goodwill? Or wherever the trophies of our youth go to die. And that, of course is the other half of the Big Truth: wherever our souls go when we leave planet earth, our Stuff remains.

Award-winning (multiple major awards at that) author Ann Patchett confirmed my theory of the Big Truth – this writer uses any crafty means of mentioning herself and Ann Patchett in the same sentence – in a recent, reflective article in The New Yorker. Letting go of an old manual typewriter was particularly problematic for Patchett, as it was for me. She had several more of these treasures than I, and solved the problem by keeping two that had maximum meaning and giving another to a delighted eight-year-old. I solved mine by giving Pearl the Pert Pink Portable to my daughter, in whose family room it is respectfully, somewhat regally, displayed. Although Pearl will live forever in my heart for getting me through college and launched into my literary career, she is undoubtedly happier on display in a room of constant socialization than on my dark closet shelf. (Patchett noted the tendency to anthropomorphize our treasures.)

Back to the issue of departing souls and remaining Stuff. “I was starting to get rid of my possessions, at least the useless ones, because possessions stood between me and death,” Patchett writes. “They didn’t protect me from death, but they created a barrier in my understanding, like layers of bubble wrap, so that instead of thinking about what was coming and the beauty that was here now I was thinking about the piles of shiny trinkets I’d accumulated.”

Pearl the Pert Pink Portable

Disposing of the shiny trinkets, along with the ancient documents and the favorite jeans from the 1980s and the shelf of folded paper bags – there’s an unwritten law about getting rid of paper bags that came bearing bottles of wine or small gifts? – and even beloved manual typewriters is a liberating act. If the disposer has begun to realize that he or she may, in fact, die some day, it is liberating to the extreme. With every drawer-cleaning comes lightness.

I may die? Worse things have happened. At least no one will have to curse my ghost while clearing out this junky drawer.

When my beloved mother-in-law died I remember flying to Detroit with a sense of dread about dealing with her house and the trappings of 93 years. My husband was her sole survivor. But nobody had had to tell Isabel Johns to downsize. We would find in a drawer one carefully folded, tissue-wrapped sweater. In a closet, perhaps several dresses and two pairs of shoes. In the pantry, the barest minimum of canned goods and a broom clipped to the door. There were no mysterious piles of documents and receipts, no dusty boxes of unidentified photos, no collections of sermons written by her Methodist preacher husband of fifty-plus years – worthy though a few of the hundreds might have been. In lieu of Stuff, Isabel left only the enduring memories of a life well lived. And a lightness in the afterglow.

This essay appeared earlier on Medium.com

Staring into the Great Beyond

Greg Rakozy on Unsplash

Since this space is often devoted to end-of-life issues, today’s essay is offered as a new and unique perspective. And in case you need a laugh. It was written by my old and definitely unique friend Bob Dodge, a fellow supporter of End of Life Choices California. Asked for identifying bio he replied only that “the author had become delusional and cynical while standing in a local Bed, Bath & Beyond. He grants no interviews and wants to avoid being crushed by requests for TV appearances, magazine articles and the like – BUT – PBS or NPR requests will be considered. Meanwhile – – – ENJOY LIFE.”

I have never thought much about the name of the chain of stores named Bed, Bath & Beyond, thinking as most would, one can find items for furnishing different rooms of one’s home or apartment. Trash cans, wash cloths, hampers, rubber thingamabobs for shower, kitchen or bathroom and now electronic security gadgets for monitoring your goldfish, pets and the creatures, like raccoons and skunks outside near your car and front door. I really don’t mind going to these stores once in a while to browse through the isles searching for an unusual item to ponder on as to why people might want to buy such an item. But, I guess they do buy them else the store would have swept them off the shelves and replaced them with something else also so bizarre that nobody wants or really needs.

Today, Friday, I had a revolutionary experience at a Bed, Bath & Beyond in Redwood City that changed my perspective of this commercial outlet and I may return on my own free will! Let me set the scene: Mary was looking for some new items for our master bathroom, like a new rug with matching hand-towels and face-cloths and a new squeegee for the shower glass. Also on her list were new pillows, none of which interested me given I tend not to notice if the rug and towels match, the shower glass is streaked or that the pillow is sweat-stained since I prefer sleeping with my eyes closed and therefore don’t see what my head is resting on. Just knowing the pillowcase is clean is what matters most to me.

Anyway while Mary is off down one of the aisles, I am standing there, masked as usual these days, gazing at the RING displays of electronic security items, trying to figure out what all the displayed gadgets do. This display is near the check-out counters and as I am standing there a voice calls out asking, “Are you ready to check out, sir?” I look up to see a young, maybe twentyish, masked female staring at me. “No, I am not ready to check out, thank you very much,” I replied. And then it dawned on me… The BEYOND part!! NO! I am not ready to check out. Come on, I am only 83 years and 10 months old and doing pretty well thank you very much! I really didn’t think I looked so bad physically that I would attract attention! I had not realized that End-of-Life issues had advanced this far and into retail establishments no less! Imagine asking potential customers if they are ready to “check out” right there in front of other customers. I would think the process would be kept a little more private. I kind of had the same reaction when I went to buy condoms for the first time in a pharmacy. “I need to buy a package of prophylactics, please”. Pharmacist: WHAT? “Oh, CONDOMS! WHAT BRAND AND WHAT COLOR?” he seemed to shout to the few others in the store. But at B,B & BEYOND it seems to be out in the open and maybe that is good for the movement.

Another thought about choices at the end of one’s life. I think there should be a hotel chain with a name something like SWEET DREAMS or THE LAST GOODBYE or maybe CHECKING IN BUT NEVER OUT Hotel. Senior citizens could pack a simple overnight bag of a few items like a small toothpaste tube, hair brush, old and well used toothbrush and a favorite pair of jammies. Then they tell the hotel clerk, “Checking in to check out”, simple as that. And they check in with confidence knowing that when check out time comes the next day there will be no line to stand in. Fait accompli. 

This essay appeared earlier on Medium.com

The F-Words of Senior Housing

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Looking for a Senior Living spot for a parent or friend – maybe even for yourself? Here are a few tips to speed the process, in these upside down times when you can’t simply go visiting.

Where to start? There are almost as many varieties of Senior Living as there are seniors on park benches. Or there were, when people could go to parks. The site to which I’ve directed more geezer friends than I can count is A Place for Mom. (Why is it always mom? Well, sorry dads, but we seem to outlive you by a long shot.) This site, though, has a wealth of short-form information to help you home in on the sort of place you’re looking for.

After the basics – cost, location, availability etc – all you need to consider are the three F-words. The promotional stuff really doesn’t tell you about the F-words. In essential order of importance they are:

Photo by Brooke Lark on Unsplash

Food. Interest in food increases exponentially with age. At my own geezer house (call these places what you will, I call mine the geezer house) we have a four-star chef. Presumably the salary and benefits here are good, because the job has to be about as much fun as being a Trump appointee. Somebody wants ethnic, somebody wants more garlic, somebody else wants bland and tasteless. Too much spice! Not enough dessert variety! More light choices! You get the picture. So ask about the food. Ask whether there’s an onsite chef or an outside food service. If meals are contracted to a supplier, you or your geezer friend/relative may not love the food. Weekly entrées repeated throughout the month? Not wonderful. Get specific with your food questions.

Frivolity. Almost everywhere promises eternal happiness through crossword puzzles and arts-&-crafts. Almost everywhere advertises elegant-looking dancing couples. Don’t believe it. Ask for pictures of the onsite library. Ask about the fit with what you or your geezer enjoy: Symphony & opera – assuming we eventually get those chances? Find out if the facility has regular transportation to such events. Nature walks? Find out if there are arrangements for hikes or offsite exercise. Socialization? Find out what the real opportunities are, not what the pretty pictures in the brochures suggest. Preferences about all of these don’t magically change on moving from a regular neighborhood to a “senior community.”

Photo by Kai Pilger on Unsplash

Fire drills. Every city or county has safety regulations. Equal parts important and invasive. Once you move into a geezer house your safety is in its hands, and it’s not always pretty. Ask for details. Some places (mine included) have unannounced fire drills. As far as I know, no one has ever died of a heart attack by being blasted awake from a nap by the most god-awful shrieking noise you’ve ever heard, generally followed by instructions to remain calm. But I’ve come close enough that we now have an agreement that they alert me ahead of time so I can arrange not to be at home. Try to find out what invasive procedures are in place for staff to enter an apartment without prior permission. It may well be necessary (Is Mrs. Jones OK? She hasn’t been seen today . . ) but it’s one more major change to face, and geezers don’t do change any better than the next person.

Here’s to the day when we all emerge from virus hell, and explorations in real time render a focus on the Senior Housing F-words unnecessary.   

What If Your Grandmother Simply Wants to Die?

“Is this living?” she asks me. And then again, the words that are hardest to hear, “I just want to die.” This from a greatly beloved cousin of mine, someone I have known my entire life. She is now 93, widowed for 12 years, living comfortably in an assisted living community in upstate New York, relatively healthy for her age.

Maybe you recognize your grandmother in her? At almost every turn, if you turn around among today’s retirees, chronically ill or elderly, there is this strain of despair. Bits of it were always there, particularly among the “old-old” as over-80s tend to be categorized. But add the isolation of quarantine, and questioning the value of living gets to be a pandemic in and of itself.

In my own independent/assisted-living building there is a 96-year-old retired college professor, a nationally recognized poet and writer, longtime radical activist who now shares my cousin’s despair. Her son comes every other week from his home a two-hour drive away, but more and more she feels it’s only out of a sense of filial duty and must be burdensome to him. Because both her sight and her hearing are diminished she can no longer write – or even read without a struggle. If others try visiting, to read to her or perhaps listen to favorite music to create a small break in the monotony, “it just feels artificial,” she says. “Everything feels artificial. I am just existing here, a prisoner in my own apartment.”

Photo by Gabriel Santos Fotografia on Pexels.com

These are women (and occasional men) whose lives were made meaningful by trips to the symphony, or a lecture, or even to the grocery store. A surprising number of them, including my cousin, were activists; they are the ones now writing letters and postcards to representatives – or to voters. But they are also the ones with diminishing sight or arthritic fingers, and up pops one more reason not to want to live any more.

So how to find meaning, some reason for living? For many there are ‘daily inspiration’ type services by the zillion, available to send messages by phone, text or email as frequently as anyone might ask. I’ve talked with several dozen people while putting together this essay, men and women both, who say their daily messages from religious sites, astrologers or you name it brighten their days and often bring meaning in these isolated/isolating times. (Some of them are re-reading the Torah, the Bible or the Quran.) Unfortunately, neither my cousin nor my friend in this building would be a candidate for inspirational messaging of any sort.

But for almost anyone, telling her story can turn into a reason for living – and more. As the memorable song in “Hamilton” goes: Who lives, who dies, who tells your story? Telling it yourself gives you editorial control, if nothing else; if you’re old and isolated it might give you much more. There’s a site called StoryWorth on which one can sign up one’s grandmother for a fee. Every week, StoryWorth sends a question like “When did you buy your first car?” or “What was your childhood home like,” things of that sort. Grandma reminisces about the question, perhaps attaches photos of the old home place, and hits Reply. At the end of the year, StoryWorth (this is not a paid plug; there may be similar sites but I couldn’t find them) puts it all together in a book for the family.

I bought my cousin a cassette recorder. Yes, they’re still on the market. I’d initially thought to get her a digital voice recorder (those who have iPhones need nothing more) but her son suggested that anything digital might be too bewildering. Along with the recorder I sent a converter device, into which her son can place the cassettes and morph them into thumb drives or something of the sort which can easily be mailed to children and grandchildren. Because I’ve known her all my life, I was also able to send a list of more specific questions – How did you meet Joe? Where did you go on your honeymoon? What do you remember most fondly about that first apartment (the one with all the roaches)? What were the parts you and Joe sang in the Carolina Players production of “Of Thee I Sing”?

Will it help? Who knows. Her voice has indeed sounded a little more upbeat and she says she’s looking forward to the recorder’s arrival. Those of us who still love life, despite its chaos and quarantine and bitter inequities, generally wish that joy for others. But the population of lonely, isolated seniors grows every day; some of them simply wanting to die. This space welcomes any and all thoughts on what to do if it is your grandmother.

Partnering for Today and Tomorrow

crop diverse colleagues stacking hands together during training in office
Photo by Andrea Piacquadio on Pexels.com

Got a partner? Partnering is alive and well, and might still save us all.

Not just the individual partner (lovely construct though that is, and I miss mine!) but partnering on the local, national and global level. What’s heart-warming to see are the innovative ways being discovered for partnering while apart.

Hopefully we’ll be able to revive this at the international level. While America-First-ing for the past three years we’ve pretty much eliminated every partnership that was helping us fight climate change, slow the threat of nuclear destruction, protect the planet’s air and water, little things like that. But may we please not totally un-partner ourselves from the W.H.O. and everyone around the globe working to find COVID-19 therapies or vaccines?

But on the upside! Other partnerships are thriving, innovating and saving lives. My friends Terry and Rich, for example – she’s an artist/printer, he’s a retired physician – are partnering with nonprofits which, in turn, partner with restaurants and food sources, and together (while apart) they are cooking, serving, delivering and feeding hordes of isolated or homeless souls across San Francisco. All over America kids and young people are partnering with faith communities that partner with other nonprofits to shop, run errands and otherwise help homebound seniors. The abounding stories of generosity in partnership can get you through the darkest times.

And even for us homebound/quarantined seniors – probably the last who will be sprung free as things open up – there are new and interesting ways to partner with those on the outside world. If you’ve not already met my favorite current partner, may I introduce you to End of Life Choices California. EOLCCA has, from its beginning, partnered with individuals facing the end of their own lives and considering using the California End of Life Option Act. I’m privileged to have worked as a volunteer in this field for the past several decades, most recently with EOLCCA. Supporting someone who is dying, easing that transition however you can, is a fairly straightforward (and immensely rewarding) task. But when you can’t be there to hold someone’s hand? A remarkable EOLCCA management team quickly perfected a system using communications technology to connect key personnel, critical data and the individual volunteer in order to walk dying individuals and their loved ones through an intricately difficult time. I’ve not done this yet, but reports on early cases are uniformly optimistic and encouraging.

Here’s the bottom line: We’re better off partnered. Even when six feet apart, and hopefully back with our arms around each other one day.  Not “first” or best, solo macho or going-it-alone. Partnered.

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This essay appeared earlier on Medium.com, a good site for information and ideas that I’ve been writing for in recent months. You might want to check it out. (But my Medium thoughts will also continue to appear on this page. Thanks for visiting!

Quarantined in the Geezer House

Clouds 3.21.20
West view from 7th floor

“Six die, 53 ill at nursing home,” reads the San Francisco Chronicle headline. It follows a similar, recent headline, “Coronavirus: 27 test positive at Orinda nursing home,” and seemingly endless others: “New cases in Alameda County facility,” “Another death at Gateway Manor”. . .  These are the sorts of headlines that the management of my particular senior housing community most fears, and that strike a little dread in the aging hearts of my neighbors and myself. I live in a 12-story assisted living building near downtown San Francisco. It includes some 90 apartments housing singles and a few couples with a median age of, say, 87. That is a random number, chosen only because it puts me in the younger half. I generally refer to our place as the Geezer House, but the marketing materials use slightly more refined wordage. Those materials do not lie: this is not the ritziest senior living place in town, but it would fall in the “upscale” category.

There are hundreds of senior living facilities in the San Francisco Bay Area, ranging from minimum-care to rehab to lifecare to nursing home; all of us are, to one degree or another, the scariest target populations for COVID-19’s quiver of poison arrows. At the center are the nursing homes, source of the horror stories that seem to increase daily; my community is somewhere around the second ring out from the bullseye. Though we are somewhat less vulnerable than nursing homes, if one COVID-19 virus particle managed to sneak into our building it would be Katie-bar-the-door. We’ve had practice runs, with flu or norovirus, but those moved in slowly, two or three new cases per day until the mini-epidemic retreated. With COVID-19 we’re staring down a mystery virus that, in neighboring senior facilities at least, seems to move in and take over in a blinding flash.Covid cluster

Extreme measures are underway to prevent that from happening in my building. Think San Quentin, but with better food. We began with Mayor London Breed’s shelter-in-place decree on March 16; this being San Francisco, Mayor Breed got a three-day jump on Governor Gavin Newsom’s March 19 statewide order. Life in geezer houses took a sharp turn toward confinement at that point. I encountered the new reality head-on when innocently heading out to drop some mail in the box across the street. “If you step out that door,” my friend the concierge remarked, “you must first sign this document.” He handed me a paper declaring that I “understand that by departing (the facility) I am violating Public Health Order No. C19-09, enforced by the San Francisco Police Department” and that I “may be excluded from (the facility) and not re-admitted.” I thought better of mailing my letters.

Birds in treesThere is a stillness here. Sometimes it’s eerily pleasant, the silence broken by birdsong in nearby trees. But often it is ominous. Having worked as a hospice volunteer and with other end-of-life organizations, I know the sudden stillness that is death, and others here have experienced it when losing a loved one. So here we are, in a place where most of us have come planning to stay until we die – and we’d just prefer not to be thinking about it in the middle of a pandemic. Listening to the stillness, watching the quiet streets no longer bustling with cars and people – manages to equate with death and become just a tiny bit stressful.

Life in confinement turns out to be something for which many of us were remarkably ill prepared, and there’s little comfort in knowing we share that woeful lack with millions of fellow citizens and certainly the Trump administration. Comfort is in short supply under social distance guidelines. Most of us here were children during World War II, memories of which have a certain nostalgia: there was shared sacrifice then too, but it felt noble rather than resentful. And there were Mr. Roosevelt’s fireside chats.

FDR 1936
FDR in 1936

I don’t remember the first of these, which was given a few months before I was born, but I well remember some of the last, during the war, when we’d gather around the big Philco radio to hear that deep, cultured voice. Grammatically perfect, unfailingly calm and reassuring. It’s hard not to yearn for such a voice when listening to our current president’s egotistical bombast and vulgar, vicious divisiveness. I think the memories of very different times accentuate the vague feeling among residents of senior living facilities that we are imprisoned against our will.

On the upside for my fellow inmates here and me, our fortress is pretty posh. Three good meals delivered daily in compostable containers, creature comforts like views of the San Bruno mountains to the south, or the San Francisco sunsets from our west windows. On the downside, it is possible to spend days at a time without seeing another human being, other than the masked person who shows up every day to take your temperature. For those of us still mobile there are decidedly other upsides: a small exercise room with treadmill, weights etc, and an outdoor terrace on the second floor (barred gate at the bottom of its stairs.) Walking from one end of the terrace to the other requires 180 steps. The exercise room being too small to accommodate more than one socially-distanced person, I get my best exercise walking from the 7th floor to the 3rd to see if anyone is on the treadmill. Eight or ten of us are also known to go walking at the same time, appropriately distanced, and thereafter to hang out for also distanced but at least human-to-human, conversation – though it does include frequent remarks in the “Did you see who that gurney came for?” category.Treadmill Some of us are more obsessive than others about checking the case/death numbers posted every morning at 9 by the San Francisco Department of Public Health; everyone talks less and less about when the country may “open up.” Or about politics at all, for that matter. Political discussions pretty much begin and end with “What about Trump saying . . .” This place is not a bastion of conservatism.

What’s not heard a lot? Complaints. If we chafe at confinement, we’re grateful to wake up without a fever. Most of us have friends or family in New York, Atlanta, New Orleans or Seattle and we worry about them far more than they need worry about us. All of us have friends or family who are doctors, nurses, first responders and others on the front lines. Somehow, gratitude seems to edge out the fear in our geezerly hearts.

Gratitude - sunrise

This essay also appears on Medium.com, a fine site committed to the exchange of ideas, knowledge and perspectives, on which I’ll be posting in the future. But I’ll still be holding forth right here on franjohns.net. So stick around!

Cycles of Living and Dying . . .

Sebastian entered the world eight weeks ahead of schedule, weighing all of two pounds. His lineage is Korean/African American/German, which may offer an insight into how determined, individualistic and utterly beautiful he is. He had emerged from NICU (the neonatal unit at Kaiser) and gotten his fighting weight up to nearly six pounds when he first came to visit my husband Bud.

Bud w Sebastian 1.3.19
Sebastian (unimpressed) meets his honorary grandfather

That was about mid-January. In early February, about the 11th, Bud’s congestive heart failure of many decades took a sudden downward turn, and by Valentine’s Day he was in his last hours of life on this planet. Sebastian came to visit – well, he brought his parents too, but they are not central to this story.

His mom plunked Sebastian onto Bud’s chest, as he lay breathing heavily on his hospital bed, red balloons snagged from the downstairs dining room floating around. The last deliberate movement I can associate with my husband as he died was his left arm making a sort-of patting gesture toward the tiny pajama-clad bundle of new life on his chest.

We should all sign up for this: old life ending as new life begins. Seeing life as a natural continuum might not make much difference as we enter, but it could help us take more control of our exit – simply by confronting the fact that we will indeed exit. I like to think that my husband’s last moments were somehow heartened by the certainty that life does, and will, go on.

Bud was fortunate in other ways. Having reached his 90th year, he had been vocal about his readiness to die and had expressed his wishes clearly in writing. There are many good options now: hospice or palliative care, enforceable documents like DNRs and POLST forms (Do Not Resuscitate, Physicians Order for Life Sustaining Treatment,) etc. POLST formAnd in a growing number of states there is a right to confront mortality by hastening one’s dying. In California where I live there is the End of Life Option Act which gives terminally ill, mentally competent adults the right to ask their physician for life-ending medication. For many, that is a way to meet life’s end with extraordinary peace.

A relatively new organization, End of Life Choices CA, is part of this continuum, this big picture of Birth/Life/Death/Peace. EOLCCA provides information and personal support re  California’s End of Life Option Act and all other legal end of life options. It is among several nonprofits dealing with critical aspects of end-of-life care – and helping us all see more clearly that death, like birth, is a universal experience.

When training, recently, to be an EOLCCA volunteer I met a remarkable fellow volunteer named Lori Goldwyn, who may understand both ends of this continuum as well as anyone around. After earning an M.S. degree in Education and working in women’s health for several years, Lori had a homebirth 30 years ago that led her to become a childbirth educator and labor doula. “I came to believe in the value of supporting the natural process as much as possible,” she says, “for both the mother’s and her baby’s sake. A woman in labor contends not only with the pain of labor,” Lori adds, “but with the intensity of realizing that there’s no way out. She can’t escape, quit or divorce this one. The only way out – as is true with the rest of life – is through.”

Eventually the link between natural birth and natural death became clear. “While being with my mother in an inpatient hospice in 2010,” Lori says, “I was struck by the similarities between the birthing and dying experiences.” That epiphany led to her working in hospice and palliative care, as an End of Life Doula, and now also as a volunteer with EOLCCA. Her website, Comings and Goings, reasserts the validity of this continuum with this subtitle about Doulas: Caregivers to those on the threshold points of our Earthly existence.Moon & clouds

“When we get that terminal prognosis, or as we lie dying,” Lori says, “there’s no escaping this reality, this ultimate inevitability.” She quotes the Italian director Federico Fellini: “All we can do is try to become aware that we are part of this unfathomable mystery. We are a mystery among mysteries.”

As he grows, I think Sebastian will also understand this mystery, this continuum, as well as anyone. Sebastian started off in a softly-lit incubator watched over by his mother, a nurse. Weeks later, his honorary grandfather was leaving the planet. And they were able to trade greetings on their journeys.

 

 

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