Patients fight hospitals (& not just Catholic hospitals) for proper care

“Suppose I wind up being taken to a hospital,” said the lady with the penetrating blue eyes and a lovely, long braid over her shoulder. “How can I keep them from doing all those things I don’t want — ventilators, feeding tubes…?”

The lady with the lush braid was among a small group of retirement community residents with whom I spoke yesterday about end of life choices. None of them fear death. All of them fear aggressive, unwanted treatment. A colleague and I had been invited to talk with them about documents (advance directives, POLST forms, etc) and legal measures that can help insure a compassionate end. But the distressing reality is that there are no guarantees.

This is where we are with health care: patients having to fight against doctors, hospitals, systems — and directives from Bishops — for the right to die in peace.

A recent Kaiser Health News article (KHN is a publication of the Henry J. Kaiser Family Foundation and unrelated to Kaiser Permanente) cited problems arising from directives to Catholic hospitals about a variety of issues. The directives, issued in November by the U.S. Conference of Catholic Bishops, changed the policy on feeding tubes, for example, from “presumption in favor of”  to an “obligation.”

“This obligation,” the bishops said, “extends to patients in chronic and presumably irreversible conditions,” such as persistent vegetative state, who might live for many years if given such care. A feeding tube is not required, however, if it wouldn’t prolong life, would be “excessively burdensome for the patient,” or would “cause significant physical discomfort.”The directive raises fresh questions about the ability of patients to have their end-of-life treatment wishes honored — and whether and how a health care provider should comply with lawful requests not consistent with the provider’s religious views. Hospitals and nursing homes do not have to comply with requests that are “contrary to Catholic moral teaching,” according to longstanding policy that, as in the case of the revised directive, applies to non-Catholic patients as well.

As the women in our group yesterday understand, you can wind up with unwanted treatment in all sorts of circumstances, not just when you’re dying.

Dr. Lachlan Forrow, a Harvard University medical ethicist and palliative care specialist, expressed strong concern about the new policy, stressing its potentially broad scope. “That gets to be a very, very large number of people,” said Forrow, who heads a panel developing recommendations for the state of Massachusetts on end-of-life care.

(A)ccording to Catholic officials and outside experts, the directive may well apply to a wider range of patients, those that it describes as having “chronic and presumably irreversible conditions,” though the organization representing Catholic health facilities downplays the impact. Experts say this affected group could include those with massive strokes, advanced Alzheimer’s disease, traumatic brain injury and Lou Gehrig’s Disease.

If a patient or family didn’t want a feeding tube “and the reason they don’t want it is they basically want to die, then the Catholic institution would explain to them they can’t cooperate with that and they would have to go to another institution,” said the Rev. Thomas G. Weinandy, executive director for doctrine at the bishops’ conference, who helped draft the policy.

Weinandy said “obviously the public should know what the directives say,” and patients and relatives “can easily download the directives or get a copy.”

Oh, sure. The EMT people are loading mom into the ambulance, and you ask them to wait until you download a few pages of papal edicts.

In the days before she died two weeks ago (in a non-Catholic hospital) my sister Jane occasionally showed signs that, though sleeping, she might be experiencing pain. My niece, who was keeping round-the-clock watch over her mother, more than once asked the attending physician for additional pain medication and was told, in a “There, there now, dear” voice that “We can’t hasten!!” My niece is a tenured law school professor.

Doctors make a lot of fuss about that “First, do no harm” business in the Hippocratic oath. Is withholding pain medication because it might cause death a few hours sooner than later doing no harm? Is inflicting painful, unwanted and unwarranted interventions for some obscure religious reason doing no harm?

Catholic Directive May Thwart End-Of-Life Wishes – Kaiser Health News.

Polish anti-abortionists invoke Hitler

It gets worse. After yesterday’s post, in which the linking of abortion to “Black Genocide” by Georgia Right to Life was reported with sadness and a little rage, I received a link to a story in the European edition of Telegraph U.K. It concerns a newly launched campaign to link abortion in Poland with Hitler’s extermination of Polish Jews. It reaches a brand new low.

Accompanying the article is a large, color photo of the poster which is at the centerpiece of this campaign. A leering Hitler, two horrific pictures. You may or may not want to read the Telegraph story or view the nightmare-producing poster. You are probably not old enough to remember Adolph Hitler, but I am. His images were all over the newsreels of my childhood. My father woke my sister and me in the middle of the night one night to hear his voice over the short wave radio so we would know the voice of a madman. Some of my most cherished and admired friends are Holocaust survivors or children of Holocaust survivors. Now, because I believe in a woman’s right to control her own body, to be equated with Hitler is a little much.

The provocative images, which appeared in the western city of Poznan as a part of a promised nationwide campaign, also carry the slogan “Abortion for Poles: introduced by Hitler, March 9, 1943.”

Fundacja Pro, the organisation behind the billboard, said that it wanted to remind Poles that abortion was first introduced to Poland during the Second World War by the country’s Nazi occupiers as a means of limiting the population of a people they deemed inferior.

One of Europe’s most devoutly Catholic countries, Poland now has some of the strictest abortion laws in the EU, and any attempt to have them liberalised arouses furious and passionate debate.

“It was Hitler who first introduced abortion to Poland, and in several days it will be the anniversary of that event.

“In this context it is worth recalling the words of Pope John Paul II: ‘History teaches us that democracy without values easily turns into open or thinly disguised totalitarianism’,” Fundacja Pro said in a statement.

Values? Whose values? Does the value of a woman count? Does a woman still have a right, any right, to determine what happens to her own body? Or are only a few pontificating men allowed to decide what our ‘values’ should be?

(T)he use of Hitler, along with the torn foetus pictures, has already incurred the wrath of critics. Nazi Germany inflicted horrific levels of death and destruction on Poland, so any perceived attempt to hijack that suffering for the sake of a political or ethical agenda can be viewed with distaste.

“I understand that this campaign is designed to shock but there are limits to the use of shock,” said Elzbieta Streker-Dembinska, an MP and member of the Polish parliament’s health committee. A foetus and Adolf Hitler is unjustified comparison. The design of the billboard is unacceptable and crosses the boundaries of decency.”

Well, yes. One wonders if decency is a word the creators of this campaign can even begin to comprehend.

March 8 is International Women’s Day.

Hitler abortion poster sparks anger in Poland – Telegraph.

Abortion foes stoop to new low

Not satisfied with the use of fear and intimidation to deprive women of their right to choose an abortion, or closing clinics by murdering dedicated doctors, anti-abortion forces have now taken on a new mission: to convince African American women that pro-choice is really a plot to exterminate their race. In other words, desperate, vulnerable young women will now get a new message: You must always bring an accidental, unwanted child into the world — forget the cost or damage to its mother (and often to the child) — because it is your ethnic duty.

When these people achieve their goal of eliminating abortion rights altogether, it will be these women who will die from butchered, back-alley abortions. Is anybody considering that? Or do they really believe the twisted rhetoric they are employing in the damn-the-torpedoes drive  to abolish a woman’s fundamental right to control her own body?

For years the largely white staff of Georgia Right to Life, the state’s largest anti-abortion group, tried to tackle the disproportionately high number of black women who undergo abortions. But, staff members said, they found it difficult to make inroads with black audiences.

So in 2009, the group took money that it normally used for advertising a pregnancy hot line and hired a black woman, Catherine Davis, to be its minority outreach coordinator. Ms. Davis traveled to black churches and colleges around the state, delivering the message that abortion is the primary tool in a decades-old conspiracy to kill off blacks.

The idea resonated, said Nancy Smith, the executive director. “We were shocked when we spent less money and had more phone calls” to the hot line, Ms. Smith said.

This month, the group expanded its reach, making national news with 80 billboards around Atlanta that proclaim, “Black children are an endangered species,” and a Web site, www.toomanyaborted.com.

Across the country, the anti-abortion movement, long viewed as almost exclusively white and Republican, is turning its attention to African-Americans and encouraging black abortion opponents across the country to become more active.

A new documentary, written and directed by Mark Crutcher, a white abortion opponent in Denton, Tex., meticulously traces what it says are connections among slavery, Nazi-style eugenics, birth control and abortion, and is being regularly screened by black organizations.

Black abortion opponents, who sometimes refer to abortions as “womb lynchings,” have mounted a sustained attack on the Planned Parenthood Federation of America, spurred by a sting operation by young white conservatives who taped Planned Parenthood employees welcoming donations specifically for aborting black children.

“What’s giving it momentum is blacks are finally figuring out what’s going down,” said Johnny M. Hunter, a black pastor and longtime abortion opponent in Fayetteville, N.C. “The game changes when blacks get involved. And in the pro-life movement, a lot of the groups that have been ignored for years, they’re now getting galvanized.”

What’s giving it momentum is a history of ugliness on both sides of the issue, especially ugliness and worse suffered by African Americans. Hunter, of course, cannot understand the desperation of a woman with an unwanted pregnancy. But adopting a tactic of this sort can do nothing for understanding — and a lot to increase the future suffering of women of all colors.

Many black anti-abortion leaders, including Ms. Davis and Alveda King, a niece of the Rev. Dr. Martin Luther King Jr. and the director of African-American outreach for Priests for Life, often recount their own abortion histories (each woman had two).

Shaila Dewan’s New York Times story detailing this new campaign does not point out the fact that Davis and King had access to safe, legal abortions, which theirs presumably were. Had that not been the case, either or both might well not be here today.

Those who support abortion rights dispute the conspiracy theory, saying it portrays black women as dupes and victims. The reason black women have so many abortions is simple, they say: too many unwanted pregnancies.

“It’s a perfect storm,” said Loretta Ross, the executive director of the SisterSong Women of Color Reproductive Health Collective in Atlanta, listing a lack of access to birth control, lack of education, and even a high rate of sexual violence. “There’s an assumption that every time a girl is pregnant it’s because of voluntary activity, and it’s so not the case,” Ms. Ross said.

But, she said, the idea that abortion is intended to wipe out blacks may be finding fertile ground in a population that has experienced so much sanctioned prejudice and violence.

Black opponents of abortion are fond of saying that black people were anti-abortion and anti-birth control early on, pointing to Marcus Garvey’s conviction that blacks could overcome white supremacy through reproduction, and black militants who protested family planning clinics.

But that is only half the picture, scholars say. Black women were eager for birth control even before it was popularized by Margaret Sanger, the founder of Planned Parenthood, and black doctors who provided illegal abortions were lauded as community heroes.

“Some male African-American leaders were so furious about what they perceived as genocidal intentions that in one case they burned down a clinic,” said Carole Joffe, the author of “Dispatches From the Abortion Wars.” “But women were very resolute, saying, ‘We want birth control.’ ”

Sanger was not perfect, and Planned Parenthood employees have made reprehensible statements at times. Crutcher’s documentary, “Maafa 21”, (the name is a Swahili word used to refer to the slavery era) weaves a few threads of truth into a vicious, two-hour screed tying the pro-choice movement to the Nazis and a “great conspiracy,” proclaiming pro-choice as “Black Genocide.” It was screened recently at Morris Brown College, a historically black institution in Atlanta.

“Before we saw the movie, I was pro-choice,” said Markita Eddy, a sophomore. But were she to get pregnant now, Ms. Eddy said, “it showed me that maybe I should want to keep my child no matter what my position was, just because of the conspiracy.”

Eddy at least knows that she still has a choice. The goal of the anti-abortion movement is to eliminate that choice. I would fight for her right to have and keep her baby. But the choice should not be made by some angry white man in Texas, or by someone else’s patriarchal religion or politics. It should be made by her, the owner of her body. To have that choice removed, now that is like slavery. Show me one member of the movement who has had a back-alley abortion and I will discuss that point with her. To promote these tactics, to foster this sort of hate-based rhetoric is almost as cruel as the fate to which the anti-abortion movement would consign American women. Of every color. It makes my heart ache for us all.

(A note: If you find this appalling, check out the subsequent post, and learn what’s going on in Poland. Women’s choices are under attack around the globe.)

To Court Blacks, Foes of Abortion Make Racial Case – NYTimes.com.

More on mortality: living strong, dying well

It’s hard to think about the death of my sister Jane (below) without thinking of another death we faced together.

Our father, in his 90th year on the planet and his 20th year of widowhood, started putting the pressure on Jane and me to come to see him one Thanksgiving. As we were in different states and had families and other things needing attention, getting to Virginia required some doing. Our dad had two daughters in between Jane and me, but she was the executor of his estate and I was the one who brought comfort because I closely resemble my mother. We four daughters usually visited at different times in order to stretch out the audiences for his story-telling and generally keep an eye on him. This time he was adamant. He wanted the two of us there together.

In mid-January we got it worked out. Jane and I met in Atlanta, having to spend the night there because the Richmond airport was snowed in. We managed to get on the first plane to land in Richmond the next morning. After picking up a rental car for the drive to Dad’s home in Ashland we took him to lunch at the only place open in town. He was impatient to get back home. Once there he did his traditional monologue about his 12 flawless grandchildren, a reassurance, of sorts, of his posterity. Then he shuffled off to his room for a nap.

And that’s where we found him when he didn’t answer a call to dinner. Keeled over, on his knees at the head of his bed, where he had said his prayers for 90 years. Having  departed this realm in the midst of a conversation with God, all arrangements complete. He and God had long maintained a strong, conversational relationship.

Not all of us can engineer our departures so efficiently — you had to know my father. Or so gently as Jane’s closing days with her family around, singing hymns. But there are millions of such stories (some of which are in the book, Dying Unafraid, that was motivated by the first story above, if you’ll pardon a little blatant self-promotion here; it’s still in print.) The great majority of those stories happen not because the central character had an unshakable faith in some deity or other (although that does tend to help matters) or because he or she had mystical powers or superhuman strength and determination, but because the central character accepted his or her mortality. We’re born, we live, we die. The facing of, and preparation for, its eventual end often makes dying better and always makes life richer.

That’s the lesson of these two stories. Dying unafraid tends to happen to people who live unafraid. And who talk to their families and friends, and complete their advance directives, and make it clear what their choices are. This is equally true for the young and the old, the fit and the infirm.

What are you waiting for?

Super Bowl Ads: Anti-abortion, yes — gay romance, well, maybe

Super Bowl watchers at this house tend to be interested in the ball game. But elsewhere, apparently, the star attractions are the commercials. If you get bored in between the ads, you can even keep your laptop handy and bring up winners — winner commercials, that is — from past decades.

Being only mildly interested in this year’s game and not the least bit interested in whatever is on sale for a gazillion dollars a minute, I had been blissfully unaware of the hype and hysteria surrounding the event — until an e-mail earlier today asking if I knew anything about the anti-choice ad scheduled and simultaneous rejection of an ad that could be termed pro-gay. I did not, but as it turns out, NPR does:

This year, CBS is airing an anti-abortion commercial featuring college football star Tim Tebow, with his mother. The ad is sponsored by the conservative group Focus on the Family. Within a few weeks of that ad’s approval, CBS turned down a commercial for the Super Bowl produced by a new gay dating site called ManCrunch.com.

The Tebow and ManCrunch ads raise questions about not just what networks want in Super Bowl advertisements, but also what potential advertisers really want from the Super Bowl.

The 30-second ManCrunch ad shows two guys on a couch watching a football game. They’re rooting for their respective teams. Then, they both reach for potato chips at the same time. Their hands touch. The music builds. Then they kiss — rather comically.

I have a few problems with Focus on the Family. I have a LOT of problems with those who would have us return to the horrors of pre-Roe v Wade. Without roaming around the site a great deal I think I have a few problems with ManCrunch — but I’m not exactly their target audience. I had no problem at all, before now, with Tim Tebow, who seems a pretty good guy.

But suddenly there are problems all over. Emily’s List is petitioning CBS to toss the Tebow ad. The ad has its own, fast-growing Facebook fan club for crying out loud. Planned Parenthood is weighing in with a YouTube video in response to the tempest in the Tebow teapot.

ManCrunch, meanwhile, left out in the cold with their ad that reportedly cost $100,000, has gotten at least twice that much publicity and will probably have their own Facebook fan club before it’s all over.

Are you ready for some football?

Gay rights: a strange week everywhere

President Obama seemed finally on the move toward ending don’t ask, don’t tell after 16 years. The California same-sex marriage case was inching toward its anticipated target, the U.S. Supreme Court. Gay rights supporters were beginning to see rays of hope. That was the beginning of this week.

Nearing week’s end, Defense Secretary Robert Gates, who had joined Adm. Mike Mullen in calling for an end to the policy, was saying we should not rush into anything. Former Secretary of State and Retired Army General Colin Powell had switched gears and said the onerous law should be changed. Judge Vaughn Walker had begun to sift through testimony in the Perry v Schwarzenegger — but you can watch it (well, a reenactment set up after cameras in the courtroom were barred) yourself if you’d like to second guess the unpredictable federal judge. It has been a strange week, and it’s not even Friday yet.

In the California capitol meanwhile, State Senator Mark Leno, an openly gay and widely influential state legislator, is pushing a bill to defuse religious opposition to same-sex marriage. The bill would alleviate clergy concern about their churches losing tax-exempt status by putting the word “civil” before “marriage,” thus clarifying the differences between civil and religious ceremonies. It would protect those unwilling to perform a marriage which conflicts with religious beliefs — an argument that featured prominently in the acrimonious debates leading to Proposition 8 ‘s ban of same-sex unions.

Leno’s bill has the support of LGBT organization Equality California, whose executive director Geoff Kors says it will eliminate confusion, and of the pro-Prop 8 California Southern Baptist Convention, whose spokesman Terry Barone calls it “good legislation.”

We may never see bipartisanship in Washington, but when Equality California and the Southern Baptist Convention come out in support of the same legislation, it has to be a sign of progress. Or Mark Leno’s political wisdom. Or something.

Going to hell, or going to dance — hate group meets celebration

A small but extraordinarily vitriolic hate group out of Topeka, KS visited the San Francisco Bay Area this past week, picketing a variety of targets — anything Jewish, homosexual or supportive of same seems to do. It is, in fact, hard to find many people these folks don’t hate. You are welcome to check out their website — Westboro Baptist Church — it’s just not recommended after eating.They are headed to Dallas next.

Most people simply ignored them. But groups at several local high schools and at Stanford University took the occasion of being targeted for a little creative anti-hate-group celebrating, and some of these events are chronicled on the Not In Our Town site:

Hillel at Stanford University, one of the institutions targeted Jan. 29 by Westboro, invited the entire Stanford community to stand together Friday morning “for a peaceful gathering in celebration of our diversity and our unity,” according to the invitation they emailed to students and campus groups.

“We chose to use the incident as an opportunity to align the campus around shared values and issue a call to action,” said Adina Danzig Epelman, executive director of Hillel at Stanford. Students were instructed not to engage the Phelps family in any way, and to bring signs with positive rather than negative messages.

About 1000 students  representing dozens of campus organizations, or simply themselves, along with a number of faculty and staff, showed up at 8am for 45 minutes of musical celebration, including an unexpected bagpipe player who launched into “Amazing Grace” on the front steps of the Hillel building. It was, Epelman said, “a very broad gathering, representing the diversity of our campus.”

In a message of support earlier in the week, the Hindu and Muslim co-founders of Stanford F.A.I.T.H. wrote: “If we did not stand alongside Jews, gays and lesbians, or any other group that may be maligned this Friday, we would not be the Hindus and Muslims we strive to be.”

At San Francisco’s Lowell High School, another target, the handful of picketers were met by an exuberant horde of teenagers who seemed to agree with one sign proclaiming “We’re not going to hell, we’re going to dance.” My personal favorite sign read “Jesus had two Dads;” had he been around I suspect Jesus would have been dancing.

The only gloom, in fact, was on the faces of the young picketers. They looked more wistful than hateful. It’s easy to believe they would rather be dancing too.

Marriage: made/un-made in California

In the marriage equality case now being heard in San Francisco, and presumably headed for the Supreme Court, it’s worth looking at the points being made and the people being heard. One person being heard this week was the pro-Proposition 8 (i.e. the defendants, who want to keep the ban on same-sex marriage) star witness David Blankenhorn.

Blankenhorn, touted as scholar and expert authority for reasons I don’t fully understand, is the founder and president of the Institute for American Values. His values aren’t exactly my values, but never mind. We are each American, and a case could be made for institutionalizing us both.

If you visit the IAV website, which seems initially designed to sell books (Blankenhorn and his fellows are industrious authors) because books get front-page billing, you are then invited to “Jump directly into the think tank!” — IAV being, as noted, a scholarly operation. This is what you will learn about IAV if you float to the top of the tank:

The Institute for American Values, founded in 1987, is a nonprofit, nonpartisan organization whose mission is to study and strengthen key American values. The Institute brings together leading scholars from across the human sciences and across the political spectrum for interdisciplinary deliberation, collaborative research, and to issue joint public statements.

We ask: What are the cultural values most closely associated, especially in the American context, with human flourishing? That is, what are those ideas and practices that tend to produce competence, character, citizenship, thriving families, and a vibrant civil society?

What are the main challenges to those values? And how can those values be encouraged and strengthened?

In operational terms, our mission can be stated concisely: Through groundbreaking research and analysis focusing on fundamental American values, and in forging strong and diverse partnerships, the Institute seeks to strengthen families and civil society globally.

Blankenhorn testified that extending marriage rights to those unable to conceive and bear children — this would have ruled out my final union, since we were 58 and 62 at the time — would change it from “a child-based public institution to an adult-centered private institution” and lead to all manner of horrors, polygamy, that sort of thing. As San Francisco Chronicle writer Bob Egelko reported, in what is ongoing, thorough coverage of the trial,

Blankenhorn, the trial’s last scheduled witness, said he believes “leading scholars” share his view that same-sex marriage would weaken heterosexuals’ respect for the institution and accelerate a half-century-old trend of increased cohabitation and rising divorce rates.

But under cross-examination by a lawyer for two same-sex couples, Blankenhorn was unable to cite any supporting statements or evidence for that conclusion from the scholars he relied on for his testimony, though he said he was sure some of them would agree with him.

Blankenhorn did get tangled up a bit in his testimony, leaving one to wonder how thoroughly the Prop 8 folks read his research. Or how solid is the thinking in the IAV tank.

Plaintiffs’ lawyer David Boies also pointed to a passage in Blankenhorn’s 2007 book, “The Future of Marriage,” that appeared to contradict his entire position.

“We would be more American on the day we permitted same-sex marriage than we were on the day before,” Blankenhorn wrote.

He said Tuesday he still holds that view, and also believes that allowing gays and lesbians to marry would probably be good for the couples and their children.

Go figure. Some of us watching this unfold are old enough to remember when my native state, the Commonwealth of Virginia, decided it would be all right for Mr. and Mrs. Loving to live there as husband and wife, even though they were of different racial backgrounds. Until that day, in 1967, the arguments had been that allowing people of different ethnicities to wed was bad for everyone. It may seem ridiculous now, but it was the law of the land in more than one state then.

The Bible is going to come in here somewhere before this is all over, since same-sex marriage opponents believe it is wrong because their Bible tells them so. Biblical invocation could be speculation on this writer’s part, but the Mormon Church and the U.S. Conference of Catholic Bishops pretty well got Prop 8 passed, so I think it unlikely they will stay out of any Supreme Court battle. Their Bible isn’t my Bible. Uh, oh; yes it is. Interestingly though, my Jesus taught love and compassion while their Jesus teaches that some of His children are less equal than others.

At the beginning of this trial (in which two same-sex couples are the plaintiffs) Chief U.S District Judge Vaughn Walker posed this question: How does a ban on same-sex weddings protect marriage, the stated goal of Proposition 8? I’m still trying to figure that out.

Whatever the verdict, it is expected that it will be appealed to the Supreme Court. So this may be about marriages made — or un-made — in California right now, but it will be a question of equal rights for all Americans tomorrow. Stay tuned.

Prop. 8 witness warns of societal upheaval.

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