Insuring the Uninsured: A No-Brainer

I’ll call her Joan. She is 61 years old, working in real estate and living comfortably in an upscale rental apartment thanks partly to rent control. She has a small 401k and a small, steady income from shared family ownership in a stable investment property. But the real estate business, you may have heard, hasn’t been wonderful lately. Joan lives frugally, gives of her time and resources to community nonprofits and is highly respected in business and social groups. She has no health insurance.

“I would if I could,” she told me some time ago. “But it’s either buy insurance or buy dinner. I’m fond of eating.” Twice in the past year Joan has had to have medical treatment; once for a nasty wound in a bike accident, once for an infection that required an overnight hospital stay. She went to the only place available, the understaffed emergency room of a crowded public hospital. Who picked up the tab? You and I. I am happy to do so, for Joan and everyone else who winds up in these predicaments. But come on, it’s not exactly cost-effective.

Expanding coverage to those currently uninsured is only one segment of this moving-target health reform; I hope it doesn’t get lost the way other key elements seem to be straying from the scene. People like Joan would be the first to purchase insurance through any reasonably-priced plan. Unfortunately, I don’t see many insurance companies eager to offer such a thing, and I don’t know where many of the currently uninsured will go if the public option comes off the table.  There were some 47 million uninsured at the latest count. Add to those the swiftly-rising numbers of independent contractors and freelancers of all sorts.

Getting non-emergency care out of the nation’s emergency rooms seems an enlightened thing to do… if we could just have a little more light and less heat in the discussion.

A Life-or-Death Decision in Australia

Australian Chief Justice Wayne Martin ruled Friday that quadriplegic Christian Rossiter has the right to end his life, if he chooses, by starving himself to death. Of all difficult medical-ethical issues, this has to be close to the top. I do not applaud the decision, do not support suicide (though I strongly support the right of a mentally competent, terminally ill adult to hasten his or her own dying) and hope Mr. Rossiter changes his mind. He may well do so now.

A series of injuries combined to make the 49-year-old a spastic quadriplegic last year. Mr Rossiter, once a keen rock climber and adventurer, told the Supreme Court his life was once exciting and enjoyable.

But the reality of his situation is far from that now.

Unable to move other than wiggle one finger or toe, unable to take nourishment except through a feeding tube, Mr. Rossiter asked his caretakers, Brightwater Care Group, dozens of times to remove that tube. They went to the court for an answer, and the answer has now come. But Mr. Rossiter is talking to his doctors and says he may change his mind. Should he stick with the decision to remove the feeding tube he will not, in truth, be “committing suicide;” he will be allowing natural death. (In the U.S. he would qualify for hospice care.) Either way, the choice should be his.

There are no winners or losers in this tragic tale. But there is something heroic in one man’s determination to keep control of his own destiny. I admire his gumption, and wish him well.

Quadriplegic Christian Rossiter now has control of destiny | PerthNow.

Fitness & Health Reform: Stay Flexible

Flexiblility is the new necessity. Political flexibility if one is to make the loop from truth to Sarah-Palin fiction, emotional flexibility if you’re following the market from day to day, mental flexibility just to stay sane with it all.

So maybe we’d better look at the physical. If you can just acquire and maintain a little physical flexibility you’re on the way to fitness, health and inner peace. At least, that’s what the yoga people tell me. Plus a lot of gym people, personal-trainer people and public park people. It is these last whom I tend to believe. I failed yoga (tried and just flat-out failed; I was too itchy for sunlight and speedier movement) and can’t afford a personal trainer. But parks! What a gift to the flexibility and fitness of the world and may we please not be closing them.

In our nearby urban park there is a par course. An array of exercise stations installed usually several hundred feet apart along an outdoor trail, the par course is the Everyman/Everywoman route to flexibility, especially for Boomers and Beyonders. It features a number of stretching posts (each station comes with illustrated instructions about what to do and how many times to do it) plus a variety of sturdily-equipped stations for things like chin-ups and sit-ups and other ups. I am addicted to the par course.

For the first five decades, fitness and flexibility aren’t all that hard to come by. Thereafter, one needs encouragement in this obesogenic (my new favorite word) society in which we live. Par courses are all about encouragement. You can’t manage to hand-walk more than halfway on the parallel bars? Last week you couldn’t get past one-third! Or you’re near despair at the chin-up station, and the hunky twenty-something at the adjacent bar applauds as you master a tiny new fraction of an inch.

By the time the final health reform bill is hammered out the issue of preventive medicine may be hopelessly lost in the shuffle. “Takes too long to produce results.” “Isn’t really worth the cost or the effort.” I don’t buy any of those arguments. Until we tackle the need for lifestyle changes like quitting smoking, losing weight and getting fit we’ll just keep pouring money down the drain of preventable illness. E-mail your senator. Write your representative.

Meanwhile, I recommend staying flexible.

Tracking Down a Rumor

Rumors come, and don’t seem to go. Jim Rutenberg and Jackie Calmes of the New York Times have weighed in again today with a few facts… just in case anyone is interested in facts:

The stubborn yet false rumor that President Obama’s health care proposals would create government-sponsored “death panels” to decide which patients were worthy of living seemed to arise from nowhere in recent weeks.

Advanced even this week by Republican stalwarts including the party’s last vice-presidential nominee, Sarah Palin, and Charles E. Grassley, the veteran Iowa senator, the nature of the assertion nonetheless seemed reminiscent of the modern-day viral Internet campaigns that dogged Mr. Obama last year, falsely calling him a Muslim and questioning his nationality.

Rutenberg and Calmes point out that the doggedly persistent rumor “was not born of anonymous e-mailers, partisan bloggers or stealthy cyberconspiracy theorists.

Rather, it has a far more mainstream provenance, openly emanating months ago from many of the same pundits and conservative media outlets that were central in defeating President Bill Clinton’s health care proposals 16 years ago, including the editorial board of The Washington Times, the American Spectator magazine and Betsy McCaughey, whose 1994 health care critique made her a star of the conservative movement (and ultimately, New York’s lieutenant governor).

This is the core of what all reasonable people know:

There is nothing in any of the legislative proposals that would call for the creation of death panels or any other governmental body that would cut off care for the critically ill as a cost-cutting measure.

But as T/S Contributor Andy Geiger points out, the real issue in health reform is that people are suffering because they don’t have health coverage. Opponents to any reform at all have found a handy way to create this smokescreen by keeping everyone riled up with an utterly false rumor.

I’ve spent much of my adult life working for better end-of-life care, including being forever on a soapbox urging everyone, not just seniors, to consider their end-of-life options, have conversations, create advance directives and then get on with living. I strongly, fully support the good provision in the health care bills that may indeed now get cut.

But we need not to lose this forest for a tree. Rational people have got to continue fighting for a decent system, a decent bill.

False ‘Death Panel’ Rumor Has Some Familiar Roots – NYTimes.com.

Sisters and Heroes

When Red Room, my good Authors site (surf on over) invited everyone to blog about heroes this week I couldn’t resist posting the eulogy I wrote for my sister Mimi a few months ago. And can’t resist morphing it over here too, so herewith:

Mimi was my hero. Beginning with the day she stood down the Alpha kid in our Ashland VA gang. We were about 6 and 8 at the time. Beverly Ann Brooks kept the gang under control by placing her hands on her hips when she didn’t get her way, and declaring, “Well, I QUIT.” I was totally in awe of Beverly Ann. But one day when everyone wanted to do one thing and Beverly Ann wanted to do another and pulled that on us, my sister Mimi drew herself up to her full several feet, put her own hands on her hips and said, “Well, quit then, Beverly Ann.” I still draw on that moment for strength in times of distress.

So we grew up, with Mimi rather graciously sharing the power she acquired that day. And then we went off to Randolph-Macon Woman’s College, where Mimi regularly bailed me out when I overspent my budget – this was a time when bailouts involved several trillion dollars less than today, but they were still critical in my life. At her senior piano recital I was a nervous wreck, she was cool as a cucumber, the recital was flawless, and I remember being so proud I could hardly contain myself.

After I graduated, Mimi and my college roommate Pat and I got an apartment in downtown Richmond where we set the town on fire. Literally. One of us, who will remain nameless, left the sun lamp on late one night and we woke up to an inferno. Pat and I immediately took off – we did get the other apartment dwellers up and out, but to be truthful we were interested in our own hides. Mimi calmly sat down by the phone and called the fire department, while she took the curlers out of her hair.The neighborhood gathered in the middle of the street, watching the firemen toss our furniture over the balcony.It was 28 degrees.Pat and I nearly froze until somebody got us coats; Mimi was fully clothed with her hair combed.Those of you who knew our mother will appreciate that when she learned of her children’s brush with death her first response was, “Oh, dahling. Any lady would have stopped to put on a bathrobe.” I don’t think Mimi was interested in being a lady, she just thought ahead.

Eventually I went south to Atlanta and Mimi went northwest to Michigan. She immediately learned that southern drawl equated to dumb girl, so she sped up her vocabulary to a point at which I could barely understand her.So I talked her into moving to Atlanta, where she began a long and very distinguished teaching career.

Mimi was pursued by the sharpest and best-looking men across four states and the District of Columbia. But when she met Tom I think she recognized the person with whom she could spend nearly 50 years and never be bored. Leslie was the light of her mother’s life from the day she was born. There is, though, one issue that should probably be brought into the open here. When our kids were in high school, Leslie – along with hundreds of other teenagers – was caught up in a movement led by a Christian youth minister who will also remain nameless, since he may still be out leading movements and helping kids grow up like Leslie and we should all be grateful. But he was some distance to the theological right of many of us, and it drove Mimi nuts. Finally one day I said, “You know, Meem, given all the things we have to worry about with our children these days, I’d pick ‘too religious’ every time.” So maybe I was her hero at that point.

Mimi’s health became fragile over the past decade, and she didn’t do fragile very well. She did piano, alto, organ, accordion, Spanish, tennis, bridge, dinner parties – or declaiming on her incomparable grandchildren – she did all that fine. I am proud of her refusal to do fragile any more. I do know that heroes are masculine and I should’ve said heroine. But in the good old gender neutral a Hero is omniscient.I’m of that old school, and I’m also from woo-woo California and so I believe Mimi is now here, and omniscient, and she is still my hero.

End-of-Life Care is Losing to Lies

Here is some of the current worst news on health reform:

The Senate Finance Committee’s health care plan will not include provisions dealing with end-of-life care, now one of the more controversial topics in the health care debate, the committee’s top Republican said on Wednesday.

Senator Charles E. Grassley of Iowa said in a statement that the committee “dropped end-of-life provisions from consideration entirely because of the way they could be misinterpreted and implemented incorrectly.”

If anyone knows misinterpretation, it’s Senator Grassley. He’s the originator of such enlightened parting phrases as the one he tossed out at an Iowa meeting Wednesday, about not wanting a health plan “that will pull the plug on grandma.” There is, of course, no grain of truth in that phrase, but its repetition does exactly what Sen. Grassley and his ilk wish: whip the opposition to any real reform into an emotional, unthinking frenzy. And they are winning the war against reason one battle at a time.

A Senate Finance Committee aide confirmed that the panel was not discussing end-of-life measures, adding that they were “never a major focus” of the committee’s negotiations.

House committees have passed legislation that would provide Medicare coverage for optional counseling sessions on end-of-life services.

But as people like Senator Grassley, and former N.Y. Lt. Governor Betsy McCaughey who sought fame and perhaps fortune by starting this whole flap, keep the country inflamed with misinformation the chances of decent legislation rising from these ashes grow dim.

The hopeless optimists of the land continue to believe that calls and letters and e-mails of sanity will convince our legislators that the country will rally around a decent bill… but Mr. Grassley and Ms. McCaughey are making optimism difficult.

via Senate Bill Will Not Address End-of-Life Care – Prescriptions Blog – NYTimes.com.

Health Care that Works: Integrated Medicine

President Obama speaks at a Portsmouth, NH event on August 11 (Darren McCollester/Getty)
President Obama speaks at a Portsmouth, NH event on August 11 (Darren McCollester/Getty)

Last night’s NewsHour included a segment that gives me hope: a clip of President Obama citing integrated medical systems that are actually working, followed by an excellent in-depth piece on the Billings MT clinic that proves the point. Billings is only one of such examples.

How do they work? By getting everybody under one roof and coordinating patient care. By letting different specialties work together, rather than sending a patient from one to another to another. By compensating doctors with salaries. This last is a sticking point: if you own a piece of the MRI business, for example, you might just be inclined to order more MRIs. Or you’re tied to the work-harder-get-richer principle. But more and more doctors seem interested in having a life, in not being on call 24 hours a day, in earning good money (integrated system compensations compare well with private practices) while focusing on patient care — without over-prescribing and over-ordering to guard against getting sued.

Why does this make such good sense? Because most patients (not all) sing its praises. Because integrated care saves money by keeping people healthier, reducing unnecessary procedures, keeping people out of hospitals… the list goes on.

My oncologist retired a year after a 2006 breast cancer episode. I went to meet my new choice on the 8th floor of Kaiser Medical Center in March, 2008. She looked at lab tests (2nd floor), spotted anemia, said I shouldn’t be anemic, ordered colonoscopy/endoscopy. G.I. doc (2nd floor) found celiac disease in June, connected me to nutritionist (across the street) and to endocrinologist (6th floor) who helped me design diet plus vitamins etc so I’m healthy again. Physical therapist (4th floor) discussed fitness plans. All of these specialists, my surgeon (2nd floor) and my primary care doc (4th floor) are friends. All respond to frequent e-mails within 24 hours, saving multiple calls and appointments. All post test results, etc on my personal web page. Thus, over a 3-year period: one overnight hospitalization for mastectomy, one out-patient procedure, a reasonable number of appointments, healthy patient.

Not everybody loves Kaiser, or the other clinics being studied. But it’s a model that works.

A Story of AIDS & Living Well

As he lay dying of AIDS, my friend Michael gazed over my head in the general direction of the bathroom, managed an almost-chuckle and said, “Nahh, not yet.” This was in 1995, on a foggy gray day in San Francisco, before the discovery of protease inhibitors that would alter the course of the disease. Michael and I had sat together at a dozen similar bedsides as members of the same AIDS support group, but he knew the scene far better than I.

Michael’s sister was due in from the east coast that day. In the bathroom medicine chest were the drugs he knew could end his life in hours rather than in the days or weeks he might have left. Michael’s body had grown frail, but his mind and spirit still soared.

AIDS is a terrible way to die. So are any number of other debilitating illnesses. But many of us believe that honest discussion of prognosis, possible treatments and options are not just empowering, but sane. There is a lot of insanity loose in the land.

A study to be published in the August 15 issue of the American Journal of Respiratory and Critical Care Medicine suggests that many surrogate decision-makers actually don’t want doctors to tell them about options and potential outcomes. I say, OK, fine; don’t ask.

But for someone critically ill who wants to know, why shouldn’t physicians be allowed to tell the truth? How likely am I to regain any quality of life? While my bad cells are being destroyed, what other destruction will happen? What if I choose no treatment at all?

Throughout decades of volunteer work with hospice, AIDS and most recently Compassion and Choices (counsel and support for terminally ill, mentally competent adults) 99% of the critically ill adults I have encountered have gained both power and peace from knowing their choices. They could tell you: it is not about death, it’s about living. Dying is going to happen. Living well takes effort.

In the 1990s almost everyone I knew who had AIDS also had a stash of drugs that could bring his life to a swift end. Very few of them used those drugs. Check the Oregon statistics: far more people request life-ending drugs than ever actually use them.

It’s about safety valves. It’s about  personal choice. It’s about control of one’s own life. It’s about living well.

For anyone to oppose the piece of our complicated health reform that provides coverage for critically ill (and other) individuals to gain understanding of their conditions is irrational and unreasonable. If those opponents choose to keep their heads in the sand that’s fine with me; but why deny the rest of us the right to reason?

Michael died that night, without opening the medicine chest. He could have told you he’d had enough. He would have told you that knowing the means to end his suffering was available had given him great strength and a degree of peace for over a year. He would have told you that straight talk from his physician (who also died of AIDS a few years later) empowered and emboldened him in a remarkable battle for life.

It was never about dying; it was about living well.

1 111 112 113 114 115 124