This essay appears on the blog page of End of Life Choices CA, a nonprofit which I am proud to serve as a volunteer and board member. Perhaps you’ll visit the site, or at least find a little food for thought here.
When is being comfortable and pain-free not a good idea? Most of us would say never. As we humans approach life’s end, though, that question can get trickier. Or at least more complex.
A recent court case stirred renewed discussion of end-of-life care, specifically comfort care and pain control.
Dr. William Husel, a physician with Columbus, Ohio-based Mount Carmel Health System, was accused of killing 14 patients between 2014 and 2018 by administering excessive doses of fentanyl, a powerful opioid which has become a common, and very dangerous, street drug. Prosecutors argued that he had committed murder; the defense argued that he was providing comfort and the patients – all were in intensive care units – died of their underlying disease. Dr. Husel was found not guilty on all counts in April, 2022.
The controversy spread throughout the Mount Carmel Health System, eventually leading to the resignation of the chief executive and the firing of more than 20 employees. Dr. Husel, though acquitted of all charges, later voluntarily surrendered his medical license. But renewed discussion of end-of-life care can only be seen as a plus. All of us will face life’s end; not all of us will have given thought to what we want that end to look like. Or what choices, including pain management, we might make.
“It sometimes happens that families and even caregivers are not familiar with comfort care,” says End Of Life Choices CA Board Vice President Robert V. Brody MD. This can include end-of-life care, “where the direction switches from curing disease to keeping the patient comfortable (and) can be misinterpreted as hastening death when in fact the medical literature says that keeping people at peace actually prolongs their life.” A primary care, hospice and palliative care, and pain management physician, Dr. Brody is Clinical Professor of Medicine and Family & Community Medicine at the University of CA San Francisco. He is also a leading spokesman on matters of medical ethics in the U.S. and abroad. “Dying people often need high doses of opioids to manage pain,” he observes. “This is done in an entirely beneficent way, and in no way is it meant to cause harm. Those not directly involved may misinterpret these efforts.”
As the currently popular meme goes, “It’s complicated.” This was shown in the Husel/Mount Carmel case, and countless other instances since the meme appeared years ago. While opioids are highly addictive, and one of the leading causes of death among Americans under 55, they are widely used in treating dying patients. Most of us would welcome them, if appropriate, as we are dying.
Comfort is a happy state at any age.
Thank you, Fran. My next door neighbor and I, sitting on my deck a few feet from the Chattahoochee River with refilled wine glasses, have been talking about this for a couple of hours. No conclusions yet on what we want or could do, BUT, we both would love to be able to be part of more intelligent dialogue.
Well, hooray for both of you for having the discussion! GA does not have legal Medical Aid In Dying. CA + 9 others do. I strongly support these laws, which have built-in protections against abuse. In OR, for instance, the first state to legalize such end-of-life choice, there’s never been a case of abuse, or of a hastened death being called “suicide,” which is very, very different. GA laws are all about “Euthanasia,” which this is also NOT. If you’re interested in knowing more about the situation in GA, Google Death with Dignity GA & you’ll see there’s an organization similar (I think) to the one I work with here. Maybe you and your friend and I could have a zoom conversation! ❤
Thanks, Fran. It’s very powerful commentary and we are pleased to have a doctor who believes in this. xoxo Lois
And yayy for ALL of you!