Independent living – An all-generations issue

My friend Tom, well past retirement age, worries not only about his own future as calamitous health problems mount up, but with the future of his son, who has Asperger’s syndrome. Long an advocate for mental health and volunteer with the National Association for Mental Illness (NAMI), Tom knows the pitfalls and opportunities and options; none provide guarantees for his son’s future.

One innovative possibility for shepherding people with autism (Asperger’s is a form of autism) into a brighter future is being launched this fall in California, and was outlined by Michael Bernick, former Director of the California Employment Development Department, in an op ed piece in today’s San Francisco Chronicle.

The California State University East Bay campus in the Hayward hills is the site of an unusual experiment in higher education for people with autism. Starting in the fall quarter, college-age autistics will be encouraged to attend and build an educational community; one that draws on the autistics’ unusual academic strengths. The experiment will test the possibilities for autistics in a university setting, and more generally the possibilities for a range of students with disabilities.

Twenty years ago in California and across the nation autism was largely invisible. Today, rarely a day goes by that there is not an article regarding autism in the news media. The shelves of bookstores and libraries are filled with books on causation of autism, early intervention, parenting and even “warrior mothers” of autistics.

In earlier generations, people with autism and a variety of other mental illnesses that might well have responded to education and treatment wound up in institutions. Boomers are the first generation to consider people on the autism spectrum in two new lights: they are many, and they may be able to live with a degree of independence.

A (California) Senate report estimates that by the year 2012 at least 70,000 autistics will be registered with the state’s Regional Center system, and the number of Californians with a condition on the autistic spectrum will number more than 350,000. The emerging Center for College Students with Autistic Spectrum Disorders is an attempt to open wider higher education for autistics. The young adults with autism, born in California in the late 1980s and early 1990s when the number of diagnosed cases of autism grew geometrically, are now reaching college age. They and their parents are faced with life after high school. In particular, they are challenged to find alternatives to a life of dependency and Social Security payments that has been the main lot of adult autistics in California.

Those of us on my block have watched a young neighbor with autism grow into adulthood, sometimes with exasperation but always with a degree of affectionate admiration. We despaired over the decibel level of his voice, but there weren’t a lot of dry eyes by the end of his bar mitzvah. Maybe we’ll carpool to his college graduation.

As with the need for older adults to remain independent and as productive as they can or wish to be, autistics aren’t the only ones who stand to benefit from such programs as the one coming to Cal State Hayward.

Imagine Raymond Babbitt of “Rain Man” in college. Might it not be a better alternative for him, and much less expensive for society, than institutionalization or the SSI/SSDI government system? Might he even bring unusual skills that can enrich university life for others?

via College for autistics.

Beavers in Manhattan, Mink in California

Mink
Image via Wikipedia

Maybe beavers have little in common with Boomers, or Beyonders, but after reading T/S Contributor Caitlin Kelley’s Canada/NY beaver piece just now I felt compelled to respond with today’s news of California urban mink. Their newly discovered presence was documented by the San Francisco Chronicle’s Carolyn Jones:

First, there were beavers. Then otters and muskrats.

And now – as if the Martinez Public Works Department needed more cute, furry mammals paddling around Alhambra Creek – there are mink.

Ten months after the city spent $500,000 to shore up the eroding creek bank, a condition many blamed on the beavers and their obsessive handiwork, a mother mink and four babies were spotted this week cavorting near the beaver’s primary dam, just north of the Escobar Street bridge in downtown Martinez.

The silky, razor-toothed critters have apparently taken up residence in the pond created by the beavers’ dam, along with a variety of other aquatic wildlife.

But then again, maybe there IS some relevance. Recent posts re health and housing, which seem to be atop the news for over-50 generations if not everyone else too these days, have had friends asking if there isn’t something ELSE to write about? Well, yes. Exercise and fitness. The absolute best of which is snagging a half hour or two and heading out to circle the Central Park reservoir or roam around Golden Gate Park, or wherever your city walking place of choice happens to be. Mine is 16th Street, San Francisco, start at the Bay, end at Market (or continue whatever direction from there) and you’ll encounter every ethnic/social/business/industry/arts category you could want and the views aren’t bad at the tops of the hills. But back to the mink:

Mink are native to the area but are highly unusual. They’re more often spotted in the delta or the Sierra Nevada, but their population could be rising because of the decreasing popularity of mink coats, Bell said.

Maureen Flannery, collections manager for the ornithology and mammalogy department at the California Academy of Sciences, also confirmed that the animals in question are Neovison vison, a.k.a. American mink.

The babies probably were born in April or May and will stay with their mother until fall, when they will head out to claim their own territories, she said.

I’ve also had questions about food-and-nutrition writing, this being another biggie for over-50s (under-50s are either already sold on healthy lifestyles or eating pizza and sushi and fries and just not giving a damn about calories and cholesterol.) And fine dining also enters this late-breaking news:

Dan Murphy, owner of Bertola’s restaurant adjacent to the beavers’ dam, was also taking a wait-and-see attitude. Liability concerns over the restaurant’s weakening foundation were one reason the city decided to shore up the creek bank last fall.

“I don’t really care,” Murphy said. “Although I guess the creek’s becoming more and more of a habitat, which is pretty cool.”

Martinez vice mayor Mike Menesini, proclaiming his “a very welcoming city” is waiting to see how this newly-mixed community gets along.

So far, the mink, beavers, muskrats, otters and turtles have adopted an attitude of mutual indifference. The crayfish aren’t so lucky – they’re often dinner for their carnivorous creek-mates.

The Beaver Fest in downtown Martinez today features bagpipes, bluegrass and jazz bands. Dancing in the streets is good exercise too.

Brain Fitness: The New Best Thing

At a program on Assistive Technology for Seniors sponsored by the Commonwealth Club of California yesterday, four panelists at least one generation away from 50 themselves discussed the technological wonders being perfected by their contemporaries for the likes of boomers and beyonders. (Devices that tell your children across the country how many times you open the refrigerator; nifty machines to compute and address your every need…) But for some of us, the handsome twenty-something geek talking about brain fitness made the most newly-revealed sense. OK, maybe he’s 30-something, but not very something if so.

“Exercising your brain in very specific ways,” said Eric Mann, Vice President of Marketing for Posit Science, ” will be recognized within the years ahead as just as important as cardiovascular exercise.” The brain is not an organ condemned to progressive deterioration, he explained, but something evolving every day. Pointing out that mind and body are the two assets with which everyone comes equipped, Mann urged his largely gray-haired audience to understand that both need to be maximized through ongoing exercise.

To that end, his company has thus far created programs titled Brain Fitness, DriveSharp (brain/foot/hand fitness?) and InSight.

The program went back and forth between those sorts of brain-governed assists for our rapidly aging population — the percentage of Americans over 65 increases every day — to the computer-assisted living which is coming, ready-or-not, onto the scene. In what would surely have been proclaimed la-la land a decade or two ago, assistive technologies at one’s fingertips already include personal emergency response systems (esthetically improved over the “Help! I’ve fallen and I can’t get up!” necklace, cell phones with a button that alerts your five first choices), medication management systems (electronic pillboxes that do everything but pop the right dosage into your mouth) and senior-friendly e-mail options for the internet-averse.

The thought of all that technological wonder was enough to induce brain-weariness in some audience members who occasionally wish they had the “Number, please” telephone lady back. But because such an attitude might fall into a category Mr. Mann referenced in passing as  “maladaptive compensatory behavior,” most went home willing to hear it all as good news. And to ramp up the exercising of their brains.

More on those technological wonders in a following blog.

Looking at one's own end-of-life issues

A tough story eloquently told by California physician Martin Welsh adds poignancy to the fight for legalized physician aid in dying, and emphasis to the need for patient choice as a consideration in health reform. Dr. Welsh speaks in clear language of his current dilemma:

I am a 55-year-old retired family doctor with a large, loving family and innumerable friends and former patients whom I see often. I am an extraordinarily lucky man.

For the last five years, I have also been a patient. I have ALS (or Lou Gehrig’s disease), a cruel neurological illness in which a normally functioning intellect becomes trapped in an increasingly weak and eventually paralyzed body. Soon, I will die from it.

Through my career, I tried to honor my patients’ end-of-life wishes. But after a quarter-century as a firsthand witness to death, I’ve developed my own perspective.

It’s not that I’m a quitter. I have struggled against adversity of one sort or another all my life, and those challenges have helped prepare me for what I face now. I still delight in accomplishing difficult things, and I always wear a bright red ALS wristband that says “Never Give Up.”

That said, there will come a limit. I have made it very clear to my wife, my family and my doctors that I want no therapy that will prolong my suffering and lengthen the burden on others. I do not want a feeding tube nor a tracheotomy when the time comes that I can no longer eat, drink or breathe for myself.

Dr. Welsh suggests, for himself and others, making a list of 100 things that make life worth living, ordinary things one does every day.

Some are routine, some are “chores,” some are pleasurable. Get out of bed and walk to the bathroom. Kiss your wife. Answer the phone.

Drive your car to work. Go play golf with your friends. Brush your teeth. Write a letter, lick and seal the envelope closed and put a stamp on it. Hug your child.

Of course we do many more than 100 things each day, but for now, just imagine 100 that are essential to the life you live. Now if you take away one, you can still do 99. Is life worth living without being able to smell the rose in the garden? Of course it is! How about losing two or seven, or 23 — is life still worth living? Of course.

But suppose you get to where you’ve lost, say, 90 things, and now with each thing taken away, a bad thing is added…

At some point, no matter who you are or how strong, you can lose enough things that matter — and acquire enough negatives — that the burdens will outweigh the joys of being alive…

Recognizing he’ll reach that point one day, Dr. Welsh looks his destiny squarely in the eye:

…as I face my diminishing list of the 100 things that make life worth living, the choice of quality over quantity has to be mine to make.

Celebrations, changes and challenges

The quietude of this space of late is in direct proportion to the activity, at long last!, over at my new blog on True/Slant.com. Boomers and Beyond (you’re invited to visit) looks at issues of concern to seniors and, increasingly also to their boomer children. Health and healthcare, housing, fitness, economic survival, liesure & recreation. We’re open to suggestion. True/Slant is a still-developing all-journalists news aggregate site I think will continue to grow stronger and more useful. With the necessary little www preceding it, trueslant.com/franjohns will take you to my page.

In the meantime, I hope to keep an occasional post over here at the Celebration site. It’s a joy to have a spot in cyberspace on which to ponder anything that might seem worth pondering; it’s even more joyful to get paid (!) for it.

Hope you’ll surf over to True/Slant whenever you can. Hope I’ll still find time to post, here, things that seem too far-out or too quirky to toss up on a serious news site. Over here on Celebrations, I still need to get to the meringue cookie issue.

Co-housing: Not Your Grandmother's Commune

Somewhat like 60 being the new 40, co-housing is the new yesterday’s small town. Think pioneer groups sharing meals around a campfire… then think post-2000 college grads seeking affordable housing and wanting community; or think 60s communes with wifi and central air conditioning. You’ll get an idea of today’s growing U.S. co-housing movement. (The term is written with or without a hyphen.)

At a recent OWL-sponsored panel discussion, two representatives of different (in some ways vastly different) California cohousing projects outlined some of the reasons this option is attractive to Boomers (downsize into simpler lifestyle, find community) and seniors (anticipate future needs, find community) in particular, but multi-generational others as well. The big key word: community. Cohousing villages are designed and self-managed with intention. They range from west coast to east and in between, from simple to posh, urban to rural. Swan’s Market in downtown Oakland, CA is on the National Register of Historic Places in an area fast morphing from down-and-out to up-and- coming. Mosaic Commons in Berlin, MA west of Boston boasts of green space, green planning, green building. Blue Ridge Commons near Charlottesville, VA touts organic gardens and a renovated 1890s farmhouse, while recently completed Great Oak Cohousing, Ann Arbor MI’s second such venture, lists 30-some households which include “about 65 adults” and “about 37 kids.” Cohousing populations are moving targets.

The common thread is the desire for economically and ecologically viable close-community living. Most cohousing villages have at least two or three shared meals per week with everyone taking turns in the communal kitchen, while the rest of the time residents dine at home. Most share other things like laundry space, recreational space and assorted activities. The same occasional conflicts that probably afflicted cave dwellers arise among today’s cohousing residents, but enthusiasm runs rampant.

And increasing numbers of Americans are considering, or at the very least familiar with, the concept. This reporter appeared to be the only person in an overflow audience who had to ask who the oft-mentioned Chuck and Katie were. (Kathryn McCamant and Charles Durrett; they wrote the book.)

Waterfront Condos: More on the housing dilemma

Waterfront esplanade, expansive views from a sunny terrace, walk to the ballpark — what’s not to love about this housing choice?

Downsizing from a large, Victorian house filled to overflowing with the accumulations of two very active lives, the Langleys of San Francisco decamped, a few months ago, to a new, easy-care, sun-filled two-bedroom condo in the city’s happening-place Mission Bay neighborhood. They love the convenience, the mix of ages and cultures, the freedom from old-house maintenance worries and some unexpected bonuses like new friends living on houseboats from another era who are within conversation range of their 4th floor deck. “We (the new condo development) block the view they used to have all those years,” Judy Langley says, “but there are a lot of  trade-offs like getting the creek (which leads into San Francisco Bay) cleaned up, and the park over there…” For the newcomers, the young dog-walkers on the esplanade below, the middle-aged Chinese couple doing tai chi on the common lawn, it is an urban idyll.

Urban condos, even those without kayaks at the door and aged houseboats for neighbors, are an increasingly popular answer to the downsizing dilemma. But the dilemma remains huge and answers are seldom easy.

On the day the Langleys were hosting an Open House in their new digs, my sister was packing the last boxes from the high-ceilinged Boston condo that’s been her family’s home for decades. She and her husband are headed for a New York retirement community to which a physician daughter will also relocate from the west coast. Elsewhere this weekend a childhood friend was finalizing plans for a move from Northern Virginia to a coastal community where her husband will be able to live in a Memory Unit while she lives independently nearby.

These choices typify the variety of factors that go into contemporary downsizing decision-making: Is it affordable? Will I (or my parents) have the care that’s needed? Can life still be good (or even get better?)

And any of these families might also have considered co-housing. Yet another option for Boomers and Beyonders as well as for younger families and individuals, co-housing in some ways harkens back to a simpler, long-ago lifestyle and in other ways could only work in the 21st century. It was the topic of an OWL-sponsored panel discussion on Saturday, and will be tomorrow’s Boomers and Beyond topic.

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